Anyone out there living with stage 4 lung cancer?

Posted by nursed2075 @nursed2075, Mar 10, 2020

Is anyone living with stg4 lung cancer? How are they doing?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Profile picture for Colleen Young, Connect Director @colleenyoung

@sipka, it is so hard to see someone in pain. Like you, I hope the chemotherapy will provide some relief from the pain. Does you husband have a pain medicine/palliative care doctor who helps with pain management?

I can imagine you feel helpless and wish you could take his pain away. Sending you a virtual hug.

When will he start chemotherapy? Has raditaion been discussed to help with the pain?

Jump to this post

@colleenyoung
Hi
No, we do not have a Dr. for pain medication, we may need to look into it.
Right now, the Dr. said he is going to try chemotherapy first and see how that goes.
I have heard alot of bad things about chemotherapy, it scares me.
He is just waiting on all the referrals to go through and then, he will start, soon.
I guess he will just need to try first and see how things go.

REPLY
Profile picture for sipka @sipka

@fowlair
Hi
I am new here. My husband who is 65 years old had a lower back ache and nothing helped it get better. He finally went in to get an MRI and they found a tumor in his right lung and it had spread to his lower back bones.
This was so - out of the blue - but, Thank God we went in to get his back checked.
We are waiting on some chemotherapy for him, it should be soon.

In the meantime, my husband has back pain and pain pills but, he still seems in so much pain. I HATE seeing him in pain, it is so awful. I am really trying to be strong and positive when I am with him , it is difficult.

Does anyone have any suggestions as to how better I can help his back pain possibly?
I want to make him as comfortable as possible while he goes through this awful disease.

Thank you

Jump to this post

@sipka Sorry to hear about your husband's situation and the sudden news. We had a similar experience this summer and took us a while to get over it and accept the fact that my husband has stage 4 with metastasis being asymptomatic. With your situation similar to ours, they may do a chemotreatment cycle first (4 rounds once every 3 weeks) and in between those cycles put him on SBRT radiation if those spots are good targets for radiation. For back pain, oxycodone for 5 days helped him and he could then stop taking them. Hope they give him something to help with pain. Lung cancer is so tricky since lungs feel no pain and they are hard to detect till metastatic sometimes, unfortunately for us. Hang in there!

REPLY
Profile picture for strongone21 @strongone21

@sipka Sorry to hear about your husband's situation and the sudden news. We had a similar experience this summer and took us a while to get over it and accept the fact that my husband has stage 4 with metastasis being asymptomatic. With your situation similar to ours, they may do a chemotreatment cycle first (4 rounds once every 3 weeks) and in between those cycles put him on SBRT radiation if those spots are good targets for radiation. For back pain, oxycodone for 5 days helped him and he could then stop taking them. Hope they give him something to help with pain. Lung cancer is so tricky since lungs feel no pain and they are hard to detect till metastatic sometimes, unfortunately for us. Hang in there!

Jump to this post

@strongone21
Thank you so much for responding.
This is so difficult, just trying to keep busy for now, trying not to think about the what ifs.
I wish you and your husband all the best trying to get this nasty cancer to go away!
I will ask my husbands oncologist about possibly taking oxcycodone.

REPLY
Profile picture for Merry, Alumni Mentor @merpreb

@nursed2075- Welcome to Mayo Connect. Yes, we have a lung cancer group. I am the mentor for lung cancer and health. I do have stage 4 lung cancer. Many people in the lung cancer group do. I'm horrible on my cell phone otherwise I'd put the link here. You can access it the same way you found this group.
Why are you interested in stage 4 lung cancer patients? Have you been diagnosed with it?

Jump to this post

@merpreb YES, I was diafnoe 0n 9/10. Adinocarsinocasinoma. A right temple lession which began on my left lung. Has metz to middle of my chest bet. both lungs. Stage IV. First chemo and immuno on 12/2. Next on 12/23. Same treatment. After this immuno every six weeks do pray for me. I am NOT quite ready to cash it in. I have things which I need to take care of within my family that it takes me to do!! Thanks for ur attention. Stay blessed and happy holidays. rlf66

REPLY
Profile picture for Merry, Alumni Mentor @merpreb

@nursed2075- having cancer sucks and so does chemo. I drank tons of water to help get the chemicals out of my system. One of the chemicals that I had was cisplatin and that absolutely killed my appetite. I was also wiped out.
I forced myself to eat, small helpings of at least some protein. I also could handle pastries and the like.
Believe it or not exercising will help with energy.
What type of lung cancer do you have? Did you have any surgery?
Do you have family at home to help you?

Jump to this post

@merpreb I have stage IV adenicarsinoma. Yes, some relatives and a hand full of close associates. Thanks rlf66

REPLY
Please sign in or register to post a reply.