← Return to Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Discussion
Comment receiving replies
Profile picture for Lori, Volunteer Mentor @loribmt

Hi @oashir, I’d like to officially welcome you to Connect, though I see by your profile that you’ve been a member since July. I’m so glad you popped into the discussion and shared your experience with MZL. Everyone has such a unique story with their blood cancers.
It sounds like you did really well with the treatments until you developed PCP pneumonia. That had to be a frightening and discouraging experience. Did it take quite a while to recover from the pneumonia? Mid month, between cycles is when we’re usually at our most vulnerable with neutrophil levels low. I’m sorry to hear that you’re not quite back to normal with all the blood work. Hopefully that will even itself out over time.
Are you off all treatments now?

Jump to this post


Replies to "Hi @oashir, I’d like to officially welcome you to Connect, though I see by your profile..."

@loribmt Thank you for your message . It wasn't until they determined the type of pneumonia that they were able to prescribe a regimen. PCP is specifically related to low immunity. As such, SEPTRA is the only med that works. It was an everyday script, then 3 times a week. I am now clear of the pneumonia. I was also on a daily puffer called Breo Ellipta. It took 6 months to be finished with all the meds. As for the WM, I'm told recurrence is 2 to 5 years