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Has anyone had LITT for brain necrosis?
Lung Cancer | Last Active: Dec 2, 2025 | Replies (5)Comment receiving replies
@flusshund, It sounds like you have a great plan in place, doctors and medical systems, to back it up. I would expect nothing less! Of course, drilling a hole in your skull is scary. Weighing the risk/reward is always tough, but it's great that you have outlined what's important to you when faced with these types of treatment decisions. How soon might you have the procedure?
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@lls8000, thanks for the encouragement. Still to be determined. My MD oncologist was out last week for the holiday. Now that she's back, things are moving forward. One of the issues is that the ctDNA level ticked up from 0.0 and the PET scan is clean and the brain MRI didn't show any cancer. Working theory is that it's hidden in the necrosis.
I've revised my treatment guidelines and shared them. I'm waiting for MD Anderson's team to get back with me.
Revised Treatment Desires
I’ve been thinking about how often I hear, “It’s up to you,” and
realized it might help to clarify what I’m aiming for — especially since I’m not the medical expert here.
What I’m hoping for:
1. Do everything reasonable to keep me here as long as possible.
2. Help me stay me — mentally first, physically as much as possible. If those ever conflict, let’s briefly talk through the options and trade-offs.
3. Prioritize long-term stability over quick symptom fixes.
With these goals in mind, I’m comfortable trusting the team to guide treatment decisions. I do appreciate being given the options, along with your recommendation for the best path, and—when it makes sense—the backup plan as well. I’m happy to follow your informed, experience-based judgment.