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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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@alice90 Hi Alice - balance is not an issue for everyone with peripheral neuropathy. Some have pain only, good balance and in my case, I have no pain, numbness only, but my balance is not so good. I am in my mid 70's and often walk with a cane. At times, I've been to physical therapy for balance exercises which do help. Keeping your balance is a challenge and yes tiring. I wish you the best and do keep moving with safety in mind the best you can. Ed
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2 Reactions@alice90
I am also 91 with PN. I also suffer from bad balance and have to be very careful.
Dan
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2 Reactions@maddie14
Good morning maddie14,
I am 80 years roaming about and ride a three wheeled, semi recumbent 24 inch wheels, about 100 or so miles every week: Rain or shine, my wife and I, with all weather gear as required have over 4,000 miles on our machines: Foot pedal only, no electric assist.
Thanks for your writing and all that I can share with you is to have faith in yourself and just keep, keeping on. Move as much as you can and weather or not your issues continue, the effort put into your mobility will reward you for doing all that you can to keep on going. Attitude is one of my best tools that keep me and my gal on our bikes and helps us to remain in the game of life.
Jofree
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1 ReactionI am 64 and have been diagnosed with non diabetic neuropathy. I was told by a neurologist that 30% of people with this have no known reason for it and I will just have to live with it. Was given gabapentin but am reluctant to take it because of the side effects. Is there any treatments? Is there anything I can do? So far it is just in my feet and has been slowly getting worse over the past 2-3 years.