Leqembi: Anyone else taking this infusion to slow dementia?

Posted by badlandsgirl @badlandsgirl, Mar 11, 2024

Hello - My husband was diagnosed with Alzheimers Disease in June of 2023. The doctors at Mayo determined that he would be a good candidate for the Leqembi infusions. He received his 5th infusion today. We are hoping to chat with other folks receiving the infusion to share experiences.
Prayers to everyone dealing with this awful disease.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Is anyone on this forum experimenting with DMSO to treat Alzheimers? I'm not advocating it but have seen several reports. It's another one of those chemicals that Big Pharma can't make any money from so research has been minimal. There are lab reports on rats that showed promise. It is approved by FDA for interstitial cystitis and is found in several pain creams.

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My husband was diagnosed with Alzheimer’s this year in April. He started Leqembi in July. He has taken it every other week since then. He has not experienced any side effects except one small brain bleed that was found on MRI but caused no symptoms.

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Profile picture for nws1222 @nws1222

My husband was diagnosed with Alzheimer’s this year in April. He started Leqembi in July. He has taken it every other week since then. He has not experienced any side effects except one small brain bleed that was found on MRI but caused no symptoms.

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@nws1222 M husband has been on lequembe also, we had to move his 6th infusion since ad the flu. I'm curious if others out there on lequembe hae noticed any changes in their partner with MCI. I don't see any difference; in fact he appears a bit more confused. Please share any lequembe stories.
worried about these infusions but worried about not doing them.

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Profile picture for kjc48 @kjc48

@nws1222 M husband has been on lequembe also, we had to move his 6th infusion since ad the flu. I'm curious if others out there on lequembe hae noticed any changes in their partner with MCI. I don't see any difference; in fact he appears a bit more confused. Please share any lequembe stories.
worried about these infusions but worried about not doing them.

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@kjc48 I do not see any improvement and also see a decline. But my husband said these infusions give him hope. That is worth it for him. I’m thankful he is willing to try.

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The same is true for my husband. He feels that he has to do something and not give in to this awful disease. We will keep up the fight.

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Profile picture for kjc48 @kjc48

@nws1222 M husband has been on lequembe also, we had to move his 6th infusion since ad the flu. I'm curious if others out there on lequembe hae noticed any changes in their partner with MCI. I don't see any difference; in fact he appears a bit more confused. Please share any lequembe stories.
worried about these infusions but worried about not doing them.

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@kjc48 I’m sure you do worry about the effectiveness of lequembe! When you go to the infusion center or clinic, are there other husbands/wives also sitting and waiting for the infusion to be over? Would it be possible to talk with them? Share your impressions? They are probably thinking the same things that you are. Sort of a mini support group. Would it be worth trying?

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Profile picture for nws1222 @nws1222

@kjc48 I do not see any improvement and also see a decline. But my husband said these infusions give him hope. That is worth it for him. I’m thankful he is willing to try.

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@nws1222 My wife has been through 6 Leqembi infusions so far and I have actually seen a very slight improvement in her. She used to talk very little during social interactions, but she now talks much more. I believe she is more than capable of driving, but she is now much more confident when she drives. Just a couple of examples.

I read an article a couple days ago which I found interesting and encouraging. I hope this helps with understanding the treatment.
https://alzheimersweekly.com/leqembi-slowing-alzheimers-what-you-need-to-know/

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@kjc48 I’m sure you do worry about the effectiveness of lequembe! When you go to the infusion center or clinic, are there other husbands/wives also sitting and waiting for the infusion to be over? Would it be possible to talk with them? Share your impressions? They are probably thinking the same things that you are. Sort of a mini support group. Would it be worth trying?

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@becsbuddy Thank you for your response. I haven't seen many wives or husbands in the facility yet alot of people going in and out. Noone talks to each other but I'm not afraid to ask. It just doesn't feel like the right venue or time. SO I'm going to go to Jupiter Medical Center and see what support groups they have there as well. They are across the street from where I live. Thanks for your response.

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Profile picture for japlok @japlok

@nws1222 My wife has been through 6 Leqembi infusions so far and I have actually seen a very slight improvement in her. She used to talk very little during social interactions, but she now talks much more. I believe she is more than capable of driving, but she is now much more confident when she drives. Just a couple of examples.

I read an article a couple days ago which I found interesting and encouraging. I hope this helps with understanding the treatment.
https://alzheimersweekly.com/leqembi-slowing-alzheimers-what-you-need-to-know/

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@japlok That was a very interesting article. Keeps things realistic.

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Profile picture for nws1222 @nws1222

@kjc48 I do not see any improvement and also see a decline. But my husband said these infusions give him hope. That is worth it for him. I’m thankful he is willing to try.

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@nws1222 What a wonderful outlook and reply. I appreciate you sharing your husband's sentiment.

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