@momma3456
I have just read your post and I want to say I congratulate you on being such a caring and positive mother to your daughter. I have 4 children who are neurotypical, but my best friend has a son, now 28, who has autism and an intellectual disability. Over the years she has worked and worked to get her son the best treatment and life he can hope for. It is not so much the children in this situation who suffer, it is the mothers and fathers who work hard, day in and day out, to give their children a good life. It took years for my friend to put together a good team of doctors and care workers for her son. It was agonizing dealing with one doctor after another, some of whom gave her contradictory advice. Eventually it all came together, but not before she went through heartache after heartache, so I appreciate and admire what you are doing for your daughter. By the way, when she was in high school, my daughter had a
Down syndrome girl in her class. She wasn't too hot academically, but they discovred she loved to swim. She won all the swimming races at her school, and ended up competing at State level. I recently heard that she is employed at a company as an office worker. Disability is hard on everyone, but a gold star for pushing to get her properly diagnosed and treated.
Best wishes from Ellu in Melbourne, Australia.