Hello. I’m 78 and was diagnosed with PV/JAK2 about five years ago. Routine blood test and just before visiting my GP, my right knee became very painful. Turns out it was gout. So, I found a hematologist at my GP’s advice, then I found another hematologist that I preferred because she didn’t act like she was annoyed by my questions.
I was immediately put on Hydroxyurea(HU) and began phlebotomies as needed. And, low dose aspirin.
I was told if the HU didn’t help then I would have a bone marrow test. So, far unnecessary. I am religious about the blood tests. Now, every three months.
You don’t mention any meds in your post. You’re not taking anything?
It is a scary diagnosis but you’ve found Connect and it’s a great resource and sounding board.
Aside from seeing your doctor in three months is there a plan?
Are you near a Mayo Clinic?
Please know that everyone here is friendly and will do what they can to help you gain some control and confidence in your path.