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rozie83 avatar

Visit to National Jewish Health in Denver, CO

MAC & Bronchiectasis | Last Active: Nov 23 1:40pm | Replies (73)

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In response to activeaura and rozie83, first, how to find a good Airbnb. Look for something in the area of City Park. NJH is about 1/2 mile south of that. Anything on either side of Colfax near the hospital is probably in walking distance. Also, the Capitol Hill area near the botanic garden is a nice area with lots of places to eat and buy food and it's a short Uber ride to the hospital. In terms of how do you know it's a good place to rent, short answer is, you always take your chances. Read the reviews, make sure they have heat for the winter and a/c for the summer. We haven't had any bad experiences in Denver with the rentals so far.

The doctor I see at NJH (Dr Griffith) is my main NTM doctor but I also have a local ID doc here in Tucson who defers to Dr Griffith. Any local doc worth his or her salt knows that NJH has the expertise and they should work with them. But you'll need a local doc to order meds and bloodwork, etc. when necessary.

As for sterilizing equipment, I'm referring to my nebulizer setup, which I sterilize every third day. If I'm traveling by car I might take a small electric pot to boil water but if you're at a vacation rental like Airbnb, they would have a stove and pots/pans to use (Make sure they mention kitchen equipment on the website). For me the best option is to use a microwave for sterilization, since the microwaveable bags don't take up any space. I use Medela brand and I always make sure that where I'm staying, hotel or rental, has a microwave.

When you visit NJH the first time, you'll meet with a respiratory therapist who will teach you how to nebulize saline and huff cough to expel sputum. They'll also give you the necessary equipment and ask you to start the airway clearance regimen the very first day and from then on. Sorry to say, you'll be with the equipment for a very long time. But you'll get used to it.

Hugs and good luck!

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Replies to "In response to activeaura and rozie83, first, how to find a good Airbnb. Look for something..."

@coffcoff That was very helpful. Thank you. Roz