← Return to Locking C1 and C2 to stop the progression into my brainstem

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Well, I postponed by surgery. I approached University of Florida for an evaluation. This first appointment I can get for just an evaluation is in July 2026! I am concerned about that as my surgeon at Mayo in Jacksonville felt I should get the operation sooner than later before any more damage is done. I did speak with him a few days before the surgery and he understood my hesitation and the need for another opinion. He reviewed all my tests once again and stated he can handle C1 and C2 differently so that it would not be such a physical challenge. In that, it was good news. I have a video conference the beginning of December with the surgeon. I did some research and there is another neurosurgeon at Mayo that also has extensive experience at the C1 and C2 level. I am going to try to get an evaluation with him. As for the rest of the surgery, I am looking at posterior occiput to T1 fusion with possible extension, C2-C6 decompressive laminectomy. None of it is a cake walk. The surgeon extensively talked about all the possible risks with such a surgery. If I don't have this surgery, there is a possibility of paralysis. There really isn't a good choice in this situation.

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Replies to "Well, I postponed by surgery. I approached University of Florida for an evaluation. This first appointment..."

@day0718 You are doing the right thing in asking specific questions. Your surgeon is right about the risks you are facing now prior to surgery. I know it is a tough decision. I kind of felt the same way prior to my spine surgery and I was facing some spinal cord compression at one level and I had a lot of fear about surgery. I worked through my fear and I knew the earlier the better as far as the success of the outcome would be. My surgery was relatively simple, but my fear was off the charts. Working through all of that changed my life for the better and I have no regrets. Every patient and case is different and it always is a big decision. I hope you get your second opinion soon. Waiting until summer next year doesn’t sound so good. Is there another place to seek the second opinion, perhaps at Mayo as you mentioned? You really will be in good hands at Mayo. All of my surgeons there have been excellent for spine and for my ankle fracture.