← Return to Dysautonomia is ruining my life, no help from doctors

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Dysautonomia is a neurological disease.
Due to the nature of what it is affecting depends on your specialist. Mine affects my heart and kidneys. I see a kidney doctor and cardiologist along with electrophysiologist (for the arrhythmias). There are only three drugs for the heart but the problem being once the nerves are affected it doesn’t work well. metropolol succinct and I am using IVIG for the heart panzyga. I have noticed a huge difference in the heart. As far as blood pressure problems and arrhythmias. The electrophysiologist diagnosed the cardiac autonomic neuropathy gave me 8 years to live and half of it’s gone.
It’s in my records by the cardiologist. According to neurologist starts out as small fiber neuropathy.
https://my.clevelandclinic.org/health/diseases/6004-dysautonomia

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@artemis1886
Thank you for sharing. I have similar heart symptoms and your summary is helpful.
Hugs.