How does IVIG help neuropathy?

Posted by solobeee1 @solobeee1, 2 days ago

IVIG is primarily used for immune-mediated neuropathies, where the body's own immune system mistakenly attacks the peripheral nerves.
Research IVIG through AI to see if it can help you.
It’s enlightening.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Following this discussion. I have MGUS (Monoclonal Gammopathy of Unknown Origin) and the docs think it may be a cause of my neuropathy. Have had many blood tests. Waiting on my EMG results.

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I have multiple myeloma that started with MGUS & I was offered IVIG but I didn’t take advantage of it until recently. I’m now starting to get it monthly after getting it bi-monthly & I’m hopeful about the results. However, from what I’ve learned, it won’t work if you’ve had chemotherapy. There’s a lot to learn about.

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Profile picture for allessio77 @allessio77

Following this discussion. I have MGUS (Monoclonal Gammopathy of Unknown Origin) and the docs think it may be a cause of my neuropathy. Have had many blood tests. Waiting on my EMG results.

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@allessio77 Have they run the anti-MAG antibodies test? I am in the same boat, but my antibodies test came back normal. I have Monoclonal Gammopathy IgM-Kappa. Am scared to death to do the EMG because I had it once before on my arms and the pain was excruciating!! How was your EMG?

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I have IGG MM & I haven’t had the EMG nerve test but I’ll be discussing it all with my oncologist & neurologist shortly. Gemini AI has a lot of useful information about options.

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Profile picture for persistentc @persistentc

@allessio77 Have they run the anti-MAG antibodies test? I am in the same boat, but my antibodies test came back normal. I have Monoclonal Gammopathy IgM-Kappa. Am scared to death to do the EMG because I had it once before on my arms and the pain was excruciating!! How was your EMG?

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@persistentc I am waiting on the results of the anti-Mag test. Should be today. The EMG is scheduled in about a 10 days. Not looking forward to it. My partner had 2 EMG's and while they were uncomfortable, they were doable. Several variables here. The tech is important in the comfort.
I also show the IgM spike and elevated Kappa. I would love to find something to do about my neuropathy, but all I see are treatments that may be worse than the neuropathy! (Have not talked about this to the docs, only with co-pilot.)

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Profile picture for allessio77 @allessio77

@persistentc I am waiting on the results of the anti-Mag test. Should be today. The EMG is scheduled in about a 10 days. Not looking forward to it. My partner had 2 EMG's and while they were uncomfortable, they were doable. Several variables here. The tech is important in the comfort.
I also show the IgM spike and elevated Kappa. I would love to find something to do about my neuropathy, but all I see are treatments that may be worse than the neuropathy! (Have not talked about this to the docs, only with co-pilot.)

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@allessio77 I would love to keep in touch because it seems we are going down the exact same path.

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