Funny you said that about cancer sucking, that's part of my patient portal
password! He was having breathing problems but they thought asthma or
pneumonia.A hilar mass on his lung showed up on a CT scan Oct 6, 2024 and
suggested a CT w/contrast, which was never done (supposedly they faxed
orders but imagine center never received) At the time they were more
concerned with what they thought was blockage in carotid (ended up being
ok) After two more visits that were treated as asthma episode (Prednisone
and Albuterol) he saw a real doctor on June 2 instead of the regular nurse
practitioner. They ordered CT w/contrast. Next day they called him in and
said he needed a biopsy. Four days later, nothing happening. I called the
Biopsy place. They hadn't received anything. I looked on portal. Doctor's
office sent orders to wrong place. As you have learned, you have to have
consults before anything gets done. By the time we saw pulmonologist, had a
biopsy done, and went back for diagnosis, it was June 28. I pressed each
office to successfully her appointments pushed up but by the time we got
the referrals, consults and procedures for thoracic surgeon (debulking to
open up an airway), then meet an oncologist, see a surgeon for a port and
radiologist to discuss treatment, we were finally set to start chemo and
radiation treatment Aug 1. PET scan July 28 showed it had metastasized into
liver. They changed to less chemo and radiation and added the
immunotherapy. I pray all goes well with your husband. Unfortunately, it's
a tough journey but we plan on coming out victorious.