Recent MRI shows SCLC metastasis to liver and some bones in spine.

Posted by ohiogal8860 @ohiogal8860, Nov 7 5:47pm

My husband had his first oncology appointment last week on Friday and he said that the PET scan showed liver mets although it wasn’t in the report. He said if in liver, than chemo and immunotherapy, if not chemo with radiation, so he ordered MRIs for liver and brain. Also, PET scan showed something in the lining of the left lung, possibly mesothelioma. Had liver MRI on Wednesday which showed Metastasis in liver and in some of the bones in his spine. Had Brian MRI today, so waiting on those results. Has anyone had treatment for SCLC that Mets to bones or is this a palliative treatment situation?
My husband doesn’t get online so he relies on me to look into his MyChart and keep up with anything that involves emails, etc. I got the results later in the evening yesterday and have not told him the results. I cannot find the courage to do so. He has a follow up appointment Monday afternoon with the oncologist and figured there is nothing he can do differently by knowing, except to worry and sink. I was going to wait and let the doctor inform him. If anyone has any hope to share, I sure could use it right now. We have SO much more life to live!
Thank you for being here to listen.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@ohiogal8860 , my heart breaks for you, I wish it would have been better news. You are obviously a strong person, processing this on your own, and holding it together in front of him. The doctors relay news like this on a regular basis, they can handle it if you aren’t up for it in the next couple of days.
Treatments do continue to get better, but treating the side effects of those treatments has gotten better too. Be sure to have a thorough discussion about all of that with his oncologist on Monday.
Hugs to you, he’s fortunate to have you by his side.

REPLY

@ohiogal8860 I'm sorry the news wasn't better. it's really courageous of you to read the reports and I hope it will help you be mentally prepared to meet with the oncologist on Monday. since it's obviously an emotional appointment - I would encourage you to write down what you want to ask ahead of time. for me, I would want to know the pros/cons of the proposed treatments. in balancing quality of life it's important to think about how much benefit will you receive for what cost. and that way, you at least know what you're signing up for ahead of time. Lisa makes a great point about all of the supportive care options there are now to help mitigate treatment side effects. my dad had lung cancer in 1988 and things have come a long way.

REPLY
Profile picture for Lisa, Volunteer Mentor @lls8000

@ohiogal8860 , my heart breaks for you, I wish it would have been better news. You are obviously a strong person, processing this on your own, and holding it together in front of him. The doctors relay news like this on a regular basis, they can handle it if you aren’t up for it in the next couple of days.
Treatments do continue to get better, but treating the side effects of those treatments has gotten better too. Be sure to have a thorough discussion about all of that with his oncologist on Monday.
Hugs to you, he’s fortunate to have you by his side.

Jump to this post

@lls8000,

Thank you, I will write down everything I can think of asking. I will update Monday. Tentatively, the doctor talked about starting chemo Tuesday, Wednesday and Thursday. This schedule stinks. It has him going the 3 days before Christmas. I assume all the side effects will knock him down. He’s losing weight and can’t get it back on him despite what I give him. Thankfully, he still has an appetite.

REPLY
Profile picture for mamajite @mamajite

@ohiogal8860 I'm sorry the news wasn't better. it's really courageous of you to read the reports and I hope it will help you be mentally prepared to meet with the oncologist on Monday. since it's obviously an emotional appointment - I would encourage you to write down what you want to ask ahead of time. for me, I would want to know the pros/cons of the proposed treatments. in balancing quality of life it's important to think about how much benefit will you receive for what cost. and that way, you at least know what you're signing up for ahead of time. Lisa makes a great point about all of the supportive care options there are now to help mitigate treatment side effects. my dad had lung cancer in 1988 and things have come a long way.

Jump to this post

@mamajite,
Those are very helpful suggestions and I will make note of them. Lately, my brain is in a fog so notes would be appropriate. Thank you for being here! I’m so grateful for this group and being able to come in here and get things out there since it’s so hard to talk to my husband about it,

REPLY

My husband has metastatic lung cancer in his lungs and liver. Like you, I'm the researcher and passer on of information. I saw the pet scan results showing that it had spread into his liver before seeing the doctor, but just one hour before an appointment with radiologist. I let the doctor give the news. Chemo and radiation did nothing for his liver metastases. He will now undergo internal radiation. From what I understand, simple procedure with no real side effects. I don't know if Medicare insists on chemo and immunotherapy first but if we had known about internal radiation first, we would have chosen it. Side effects from immunotherapy (Opdivo and Yervoy combo) have been intense. He developed colitis and may have to discontinue immuno altogether. The doctor is considering putting him back on chemo but a different chemo treatment. The side effects of it are pretty severe so I'm hoping we can come up with a different plan.

REPLY
Profile picture for leighb @leighb

My husband has metastatic lung cancer in his lungs and liver. Like you, I'm the researcher and passer on of information. I saw the pet scan results showing that it had spread into his liver before seeing the doctor, but just one hour before an appointment with radiologist. I let the doctor give the news. Chemo and radiation did nothing for his liver metastases. He will now undergo internal radiation. From what I understand, simple procedure with no real side effects. I don't know if Medicare insists on chemo and immunotherapy first but if we had known about internal radiation first, we would have chosen it. Side effects from immunotherapy (Opdivo and Yervoy combo) have been intense. He developed colitis and may have to discontinue immuno altogether. The doctor is considering putting him back on chemo but a different chemo treatment. The side effects of it are pretty severe so I'm hoping we can come up with a different plan.

Jump to this post

@leighb
I am so sorry you are also going through this. Cancer SUCKS! It is straight from the pit of hell! How long ago was your husband diagnosed and does he have Small cell or NonSC lung cancer? My husband’s doctor said the pharmaceutical companies dictate that chemo and radiation has to be tried before any other treatment. I will look into the internal radiation you mentioned and ask him about it tomorrow.
Is your husband losing weight in front of your eyes? I don’t know if there is treatment to get it out of his bones…I will look into that too.
God bless you both Leigh, as you journey this battle with your husband.
Donna (ohiogal)

REPLY
Profile picture for ohiogal8860 @ohiogal8860

@lls8000,

Thank you, I will write down everything I can think of asking. I will update Monday. Tentatively, the doctor talked about starting chemo Tuesday, Wednesday and Thursday. This schedule stinks. It has him going the 3 days before Christmas. I assume all the side effects will knock him down. He’s losing weight and can’t get it back on him despite what I give him. Thankfully, he still has an appetite.

Jump to this post

@ohiogal8860, I'm sure it's difficult to watch the weight loss, but it's great that he still has an appetite. Add that to your list of questions for tomorrow; likely a consult with a nutritionist is in order. Usually, you'll see recommendations of pushing anything with high levels of protein, high calorie protein shakes, or whatever he'll eat.
This is a link to info for lack of appetite caused by treatment, but the Increasing Calories and Increasing Protein sections may be helpful:
https://www.mayoclinic.org/diseases-conditions/cancer/in-depth/cancer/art-20045046

REPLY
Profile picture for ohiogal8860 @ohiogal8860

@leighb
I am so sorry you are also going through this. Cancer SUCKS! It is straight from the pit of hell! How long ago was your husband diagnosed and does he have Small cell or NonSC lung cancer? My husband’s doctor said the pharmaceutical companies dictate that chemo and radiation has to be tried before any other treatment. I will look into the internal radiation you mentioned and ask him about it tomorrow.
Is your husband losing weight in front of your eyes? I don’t know if there is treatment to get it out of his bones…I will look into that too.
God bless you both Leigh, as you journey this battle with your husband.
Donna (ohiogal)

Jump to this post

Funny you said that about cancer sucking, that's part of my patient portal
password! He was having breathing problems but they thought asthma or
pneumonia.A hilar mass on his lung showed up on a CT scan Oct 6, 2024 and
suggested a CT w/contrast, which was never done (supposedly they faxed
orders but imagine center never received) At the time they were more
concerned with what they thought was blockage in carotid (ended up being
ok) After two more visits that were treated as asthma episode (Prednisone
and Albuterol) he saw a real doctor on June 2 instead of the regular nurse
practitioner. They ordered CT w/contrast. Next day they called him in and
said he needed a biopsy. Four days later, nothing happening. I called the
Biopsy place. They hadn't received anything. I looked on portal. Doctor's
office sent orders to wrong place. As you have learned, you have to have
consults before anything gets done. By the time we saw pulmonologist, had a
biopsy done, and went back for diagnosis, it was June 28. I pressed each
office to successfully her appointments pushed up but by the time we got
the referrals, consults and procedures for thoracic surgeon (debulking to
open up an airway), then meet an oncologist, see a surgeon for a port and
radiologist to discuss treatment, we were finally set to start chemo and
radiation treatment Aug 1. PET scan July 28 showed it had metastasized into
liver. They changed to less chemo and radiation and added the
immunotherapy. I pray all goes well with your husband. Unfortunately, it's
a tough journey but we plan on coming out victorious.

REPLY
Please sign in or register to post a reply.