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DiscussionIs anyone dealing with CLL, Chronic Lymphoma Leukemia?
Blood Cancers & Disorders | Last Active: Nov 24 1:20pm | Replies (35)Comment receiving replies
Replies to "I read your response with intense interest. How long have you been on Brukinsa? Do you..."
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@panevills Having read the various comments here, my first question is to inquire if you are seeing a true CLL expert. Since you question if you even have CLL, have you had the various tests (FISH, flow cytometry, etc.) performed? I was diagnosed with CLL nearly 20 years ago and treat with CLL experts at Mayo. Over 8 years ago I went on Zanubrutinib (now FDA approved as Brukinsa) in a clinical trial. I remain on the drug today with very few side effects. "Watch and wait" is a standard procedure for many CLL patients, depending on various markers. Make sure you are getting the best advice before starting any treatment. Check out the list of doctors at cllsociety.org and at least get a second opinion before starting anything.