← Return to Severe pain eating 7 weeks post-RT

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Severe pain eating 7 weeks post-RT

Head & Neck Cancer | Last Active: 7 minutes ago | Replies (41)

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@lizzyj58 I do indeed have some tools to help with the pain - lidocaine, hydrocodone, gabapentin. But I’m wondering more about the physiologic response - seems really unfortunate, and I wonder if uncommon, that so many foods set this off

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Replies to "@lizzyj58 I do indeed have some tools to help with the pain - lidocaine, hydrocodone, gabapentin...."

@ranchroad I was stage 2 HPV 16 positive tonsil cancer. I had 35 radiation treatments, 70 gy, and 6 cisplatin infusions. I am 8 weeks out. I am experiencing nearly the exact same blisters in reaction to eating. I have subsisted on almost exclusively VHC Boost for the last 12 weeks. It does not cause the reaction. But almost anything else does. Clear blisters back near where the lump on my right tonsil originally was. They subside if I dont eat and come back with anything other than boost or egg drop soup.

I have asked my doctors and they are not concerned either. They say it's part of the healing process and should become less frequent. The location is where the most radiation was delivered.

I am just beginning to get some taste back, but I can't eat. It's really frustrating. My pain level is not as bad as you describe. I only used gabapentin throughout my treatment and was weaned off that three weeks ago.

I really empathize with you!

@ranchroad Just adding that my radiation was also proton.

@ranchroad From what other people on here have said it sounds like a common complaint, I'm surprised your care team have not been more supportive. My husband is starting his treatment later this month,just the same as what you went through. One person said that by 3 months out from treatments symptoms got a little easier, I sincerely hope hope you start to improve soon,keep all of us here updated,please. It helps to share with others who have gone through all this. Take it one week at a time.