Long Covid symptoms

Posted by denny58 @denny58, Nov 1 6:14pm

Any suggestions for managing symptoms of Long Covid or possible CFS chronic fatigue syndrome?
I am 67 year old female. Prior to having positive Covid last Christmas I occasionally experienced Chronic fatigue symptoms. Since Covid symptoms have worsened where I have extreme weakness, fatigue, body aches and am unable to get out of bed all day, like today. I also experience shortness of breath or inability to take a cleansing breath. I am also affected by sensory issues of noise and light, preferring shades drawn and quiet which is difficult at times when the train goes by near our home despite living in the country or our dog barking.
Thankfully I’m retired but nonetheless find it frustrating when I’m not able to get out of bed and take care of household chores or attend social events. Husband is somewhat supportive but not completely understanding when I have days like this, 1-2+ times/week.

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Profile picture for ncnurse1 @ncnurse1

Hi @denny58. 67 years old also and have been dealing with Long COVID symptoms like yours since 2022. Was working full time until 2023 when forced to retire. I have sensitivity to screens, light in general, sounds, smells and struggle with chronic fatigue and brain fog. I have tried conventional and non conventional medications/supplements/treatments. I am better..But…still struggling with all the above. Currently I take a list of supplements ( will be glad to provide if you want) accupuncture weekly, massage therapy, weekly IV’s electrolytes & Ozone. I pace myself, limit conversation & chores which is hardest when I “feel good” because afterwards I crash to bed. I am involved in a Support group and talk therapy which helps me to be with others who are navigating this illness. I am a RN so have researched, been involved in 6 studies and continue to seek ideas. The hardest part? Some of my family & friends do not understand & cannot sympathize. I have explained and don’t waste my energy anymore. Sometimes I tell them/encourage them to look it up and learn about this debilitating condition that is affecting millions around the world. I wish you continued healing and peace in your life💖

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@ncnurse1 Thank you for sharing your health journey with this. I agree in that some family and friends don't understand but I sure appreciate those that do. when feeling well, I try to attend bone builders 1-2x week, swim laps 2-3x week or walk. I agree that on those "feeling good" days, its hard not to play catch up with exercise and household tasks, then suffer the next day or two. I try get a deep tissue massage 1x month. My nurse practitioner relayed information she read about Nicotine patches being explored as a potential treatment for long Covid, particularly brain fog and fatigue Apparently, some have reported improvement but this approach is still considered experimental and should be approached with caution. I think I may try this and will report back if this helped me.

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Profile picture for suefish @suefish

I get it. Same issue at home. Don’t quit. @suefish

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@suefish always a pleasure to hear from you. 🙂

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Profile picture for robinrm @robinrm

@lkirnbauer thank you for your reply. I wish you the best of luck. How long did your SGB last the first time? I know it’s very expensive and insurance does not pay for it. Do your symptoms decrease each time you get the injection? I thought I had long Covid the last two years ago and since my gallbladder came out last November, my symptoms have just kept getting worse. The surgery and anesthesia did something to me. I am seeing a functional medicine doctor and I am on a lot of supplements. It’s a long process.

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@robinrm Similar for me. I had 18” of my colon removed due to severe diverticulitis in April of 2022. I then contracted my first Covid infection in December of 2022 and on day 2 of the virus, I lost my taste and smell. After my Covid infection I began stuttering, had bad balance issues, insomnia, crazy brain fog, body tremors and headaches. I’m sure I’m forgetting some things, but you get the idea. After the first SGB injection, and for the 6 after, I could detect salty, sweet, bitter and spicy, but not before that. They also took my PTSD/Anxiety way down. I’m on Medicare and I paid nothing for these injections. I also was diagnosed with Hashimoto’s and Hypothyroidism after I had my surgery. I never knew I had either of these, so now I’m on medication for Hypothyroidism! The anesthesia did something to me as well (I was 66 at the time of surgery). Terrible headaches and brain fog which got even worse after I had Covid! Hopefully, one day this will all be a distant memory! Blessings to you for all the best in health!

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Profile picture for lkirnbauer @lkirnbauer

@robinrm Similar for me. I had 18” of my colon removed due to severe diverticulitis in April of 2022. I then contracted my first Covid infection in December of 2022 and on day 2 of the virus, I lost my taste and smell. After my Covid infection I began stuttering, had bad balance issues, insomnia, crazy brain fog, body tremors and headaches. I’m sure I’m forgetting some things, but you get the idea. After the first SGB injection, and for the 6 after, I could detect salty, sweet, bitter and spicy, but not before that. They also took my PTSD/Anxiety way down. I’m on Medicare and I paid nothing for these injections. I also was diagnosed with Hashimoto’s and Hypothyroidism after I had my surgery. I never knew I had either of these, so now I’m on medication for Hypothyroidism! The anesthesia did something to me as well (I was 66 at the time of surgery). Terrible headaches and brain fog which got even worse after I had Covid! Hopefully, one day this will all be a distant memory! Blessings to you for all the best in health!

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@lkirnbauer thank you for sharing. You have been through a lot. Thank you for making me feel better about SGB. I have to see if I’m a candidate for it first. I’ve tried so many different therapies but I am stuck in fight and flight and I’m hoping this helps. Praying for healing for you🙏

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Profile picture for robinrm @robinrm

@lkirnbauer thank you for sharing. You have been through a lot. Thank you for making me feel better about SGB. I have to see if I’m a candidate for it first. I’ve tried so many different therapies but I am stuck in fight and flight and I’m hoping this helps. Praying for healing for you🙏

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@robinrm I do believe that the SGB will help you, especially with fight and flight issues. Blessings to you.

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I am 71 (vaxed 6 mo before) and got Covid March of 2023, followed by months of long covid (LC). I am very athletic but had to minimise workouts due to LC BP spikes (highest was 196/92 and HR 98 [normal for me was 120/70 and 66]). Dec. of that year I got hit by norovirus which caused stage 3b Chronic Kidney Disease (CKD). I can do all the weight training I want, but after 2.5 years still have low-level fatigue. I do aerobic exercise in increments, speed walking for a mile or two then resting. Due to CKD my neprologist put me on Jardiance July of 2025. It changed my avg. resting BP from 119/69 and 66HR to 103/74 and 74 HR; it is now hard to get my systolic up to 120. I went on a field trip last Sunday up a steep trail for a much longer workout than usual. The next day felt like PEM, my resting BP spiked to 155/96 with HR 62, I felt cold and jittery, tired, and irregular heartbeat. It took most of the day for my BP to approach normal. I was fine the next day. I've had a few lesser times of pounding heart in the last 2 years, but this is the only obvious PEM. So, back to exercising in bits with rest. Here are some articles about covid and SGT2 inhibitors. They have protective effects on kideys and heart, not sure about LC tho. https://pmc.ncbi.nlm.nih.gov/articles/PMC10744331/

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Profile picture for lkirnbauer @lkirnbauer

@robinrm I do believe that the SGB will help you, especially with fight and flight issues. Blessings to you.

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@lkirnbauer thank you. Is there a way to private message so I can get your number maybe ask you some questions? If you wouldn’t mind.

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Profile picture for robinrm @robinrm

@lkirnbauer thank you. Is there a way to private message so I can get your number maybe ask you some questions? If you wouldn’t mind.

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@robinrm I would prefer you ask me on this platform for now. Thanks!

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Profile picture for denny58 @denny58

@ncnurse1 Thank you for sharing your health journey with this. I agree in that some family and friends don't understand but I sure appreciate those that do. when feeling well, I try to attend bone builders 1-2x week, swim laps 2-3x week or walk. I agree that on those "feeling good" days, its hard not to play catch up with exercise and household tasks, then suffer the next day or two. I try get a deep tissue massage 1x month. My nurse practitioner relayed information she read about Nicotine patches being explored as a potential treatment for long Covid, particularly brain fog and fatigue Apparently, some have reported improvement but this approach is still considered experimental and should be approached with caution. I think I may try this and will report back if this helped me.

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@denny58 @ncnurse1 I had thought about trying the nicotine patches but was shocked by the price…close to $40 + for 14 patches, store brand. Will wait to see if they’re of help, and thus, worth the cost….or if someone reports where to buy for less. Good luck!

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No worries, I’m just wondering how long your shots worked for and when the symptoms came back with a gradual and is each time not as intense my symptoms are very strong right now it’s hard to even talk on the phone. It hurts my ears. It makes it very difficult because my daughter lives out of state and it’s hard to talk to her. She gets upset with me, but I have no control over. I love talking with her. My doctor needs a consultation to see if I am a candidate for SGB and I’m praying that I am. It’s interesting because I had Covid 8/22 and I had symptoms of Long Covid, but since my surgery for my gallbladder to be removed a year ago it’s gotten so much worse. My functional medicine doctor did a special Covid SARS2 test and it shows my antibodies over 2500. I’m taking so many supplements and my body keeps creating more antibodies.
In the last month I started getting so much pressure in my ears. If you have any suggestions for that, I’d appreciate it.
Take care😇

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