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Pseudomonas Sinus Infection

Posted by namar @namar, Feb 20, 2024

I have had recurring Pseudomonas Sinus Infections since summer 2023. I started getting these about 6 months after my sinus surgery in Dec 2022. I have been on and off antibiotics since summer 2023. I have taken Levaquin and Ciproflaxin. It seems that Levaquin works the best. I am also doing Tobramycin sinus rinses but as soon as I am off the meds, it comes back. My symptoms are green sinus drainage, a lot of it. I had a CT scan done a few days ago 2/17/24 and the results came back submucosal thickening of my sinuses. At this point, I need a different type of treatment because pills are not keeping the infection away. I am worried that this could spread to the brain? if it were to spread to the brain, would that show on my CT scan?

Can someone please share what helped you get rid of your Pseudomonas Sinus Infection ? it appears that Levaquin and Tobramycin rinses aren't working for me. I read online that some people have had to take IV course on antibiotics. I have a follow up with my ENT on 3/7/24 and will ask him about the IV meds as well. I also read online where some people have asked to be referred to an infectious disease specialist. Any success stories of treatment would be great. I have anxiety as well and I am just concerned this will spread to my brain??

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pacathy | @pacathy | Jun 10, 2024
In reply to @mp3542 "I wouldn’t be able to go down there in the hot summers they have. I’m in..." + (show)
Profile picture for mp3542 @mp3542

I wouldn’t be able to go down there in the hot summers they have.
I’m in central Oregon and it’s a lot cooler here.
I’m happy to wait till the weather isn’t so hot.

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Just a thought-I got a new patient appointment at Mayo Rochester’s pulmonary department only a couple weeks out due to a cancellation. They’d suggested I call Monday afternoons or Tues a m. Would Rochester work?

I’m sorry about your sinus issues. I have them and they can be miserable.

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jnmy | @jnmy | Jun 10, 2024

You mentioned that it is an expensive trip. Sometimes Service Club Volunteer organizations in a community will support those who need some assistance with health care travel expenses. Just thought I would mention it, if you haven’t yet enquired about it.

I wish you all the best with finding out more about what is causing your health issues and what treatments are available.

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mp3542 | @mp3542 | Jun 10, 2024
In reply to @scoop "Sorry about your sinus troubles. Have you found your way to a large university health system..." + (show)
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Sorry about your sinus troubles. Have you found your way to a large university health system and sought out an ENT consult? Large university health/medical centers, which are also teaching hospitals, usually see many different illnesses and they might be able to help you.

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I went to OHSU in Portland Oregon.
They checked me over and started to do some treatments. But I could tell after a bunch of visits that they were starting to guess at treatments.
It was costing me a fortune!
So I had to quit going there.

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tessblue | @tessblue | Nov 2 5:57pm
In reply to @mp3542 "I’ve had a pseudomonas infection for over 45 years. 2 sinus operations. Warning, these operations ruin..." + (show)
Profile picture for mp3542 @mp3542

I’ve had a pseudomonas infection for over 45 years.
2 sinus operations. Warning, these operations ruin your sinus linings.
I’ve have now developed an issue where penicillin based antibiotics don’t work and absolutely shows no sign of helping at all.
I’m going to the Mayo Clinic in October 2024.
I’ve tried sinus flushes where I put the Nettie- pot powder in my water pix.
Then put it on about 1/2 of its pressure. Because of my operations the Nettie-pot nozzle goes in about 5-6”. So it really can get to where the infection is located. I’ve flushed out up to about 1/4 cup of green,gray, yellow and brown, really gross stuff.
The power in the water-pix blows past the bio film that the infection makes to protect itself.
I’ve tried everything over the years To where I’ve almost given up.
Right now, if I bend over and tilt my head sideways, it just pours out of my nose.
I live in central Oregon and I’m not a well off person. So going to the Mayo Clinic in Arizona is huge expense. I’ll drive down because of my limited income .
I’m really hoping they can help me get rid of this life long infection.

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@mp3542
I, too, have had pseudomonas sinus infection for 45 years. An infection specialist put me in the hospital for 12 days hooked up to I've. She said she couldn't get rid of it. That it was so resistant. It smells. I have bad breath. I've tried antibiotics and rinses. I thought by now it would be treatable. Do you have more info since your post?

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tessblue | @tessblue | Nov 2 5:59pm
In reply to @tessblue "@mp3542 I, too, have had pseudomonas sinus infection for 45 years. An infection specialist put me..." + (show)
Profile picture for tessblue @tessblue

@mp3542
I, too, have had pseudomonas sinus infection for 45 years. An infection specialist put me in the hospital for 12 days hooked up to I've. She said she couldn't get rid of it. That it was so resistant. It smells. I have bad breath. I've tried antibiotics and rinses. I thought by now it would be treatable. Do you have more info since your post?

Jump to this post

@mp3542
should say hooked up to IV.

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