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DiscussionHow do you manage neuropathy and loss of balance and walking ability?
Neuropathy | Last Active: Nov 17 7:53am | Replies (246)Comment receiving replies
Replies to "@artemis1886 Do you know if your problem is autonomic in nature? Your situation must be very..."
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@suetex I was on IVIG from age 10-18 until I fell off my parents insurance. I quit getting sick all the time. I have asthma and kept ending up in the hospital with pneumonia. I had to repeat second grade.
My immune system has always been impaired. In 2005 hospitalized four times with pneumonia. I was told by Dr Oaklander (a research neurologist in Boston) that I would not be in as bad shape as I am if I would have remained on IVIG. I have Lupus, Sojourn, Hashimotos, and connective tissue disease as far as neuropathy I have small fiber neuropathy, disautonomia, severe axonal sensorimotor peripheral poly neuropathy along with cardiac autonomic neuropathy my heart beats too fast (tachycardia)or too slow (bradycardia). I also have problems with arrhythmias. My BP will be high or low which ever it wants to be. I also have pericardial effusion. Mine could very well be autonomic by nature. I found out by a neurophysiologist that my lupus, sojourn, Hashimotos and connective tissue disease could be linked to my mrsa bacterial spinal meningitis I had in 2002. My bacterial spinal meningitis was a staph infection. The only problem with that theory was why was my immune system so low when I was young that I was on IVIG.