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Want to talk about Multiple Myeloma: Anyone else?
Blood Cancers & Disorders | Last Active: Nov 6 11:43am | Replies (436)Comment receiving replies
I also have MGus. I have had this for at least 15 years, but was just given that title in the last year. My IgM levels have been steadily increasing to now around 850. I have monoclonal gammopathy also. My new hemotologist / oncologist is requesting a bone marrow tap. I am 72 years old with multiple autoimmune disorders. It is thought that I have either Multiple Myeloma or Waldenstrom Syndrome. I also have swollen glands, fevers, & chronic fatigue. What symptoms, tests, & procedures have you had?
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@mpeterson323
I went from MGUS to SMM to Mutiple Myeloma fairly quickly and was told then (about 3 yrs ago) that I was high risk. Since then have had only immunotherapy, but have been in remission for about 18 mons. Most frequent monitoring is blood tests including CBC, CMP, kappa, lamda, Mprotein and ImG, ImA, ImM, of which ImG is most critical, but you seem to be well above what I understand is critical value of 400-500. I’ve also had a couple of biopsies and PET-CT.