Who's Used Ram Pathak at Mayo Jacksonville for Tulsa Pro?

Posted by WingNut @ucfron, 4 days ago

Discussed both removal and Tulsa Pro with Dr Ram Pathak at Mayo Jacksonville for my localized Gleason 3+4=7 cancer, PSA 4.5. Have been on AS for about 10 months but I think I am ready to move forward. My Prostox test results eliminated SBRT (95% chance of urinary toxicity) from my options, so I am now considering either removal or Tulsa Pro. I've told Dr Pathak I think I want to do Tulsa Pro because I feel is may have less of an impact on my quality of life (ED and Incontinence). I hope this isn't a mistake. Has anyone else had Tulsa Pro with Dr Ram Pathak an if so please tell me about it.

Thanks,

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ProsTOX estimates DELAYED urinary tract symptoms. ACUTE self limiting symptoms resolve at the same rate as IMRT the longer form of External Beam Radiotherapy [EBRT]
ProsTOX: LOW score 5% chance of delayed symptoms, put another way 95% chance of no delayed symptoms, The HIGH score is a 15% chance of delayed symptoms or 85% chance of no delayed symptoms. It is possible you misheard the oral (unwritten) spiel or the doc is ignorant.
The interval between treatments: 2x, 1x/week may mitigate the issue rather than receiving standard alternate days for five treatments?
Permanent seeds provides the optimal dose of radiation; whereas EBRT of any sort has to be suboptimal because the converging beams must
go through healthy tissue. 7 3+4 is also being surveilled as well so you should not necessarily be rushed into treatment. Go to PCRI.org and look up their YOU-TUBE videos on various Gleason scores.

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I didn’t use Mayo Jacksonville, but I did use Mayo Rochester July of 2024. I was a 4+3 and could not be happier with the Tulsa Pro procedure. If you click on my profile, you can see my story.

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Profile picture for thmssllvn @thmssllvn

ProsTOX estimates DELAYED urinary tract symptoms. ACUTE self limiting symptoms resolve at the same rate as IMRT the longer form of External Beam Radiotherapy [EBRT]
ProsTOX: LOW score 5% chance of delayed symptoms, put another way 95% chance of no delayed symptoms, The HIGH score is a 15% chance of delayed symptoms or 85% chance of no delayed symptoms. It is possible you misheard the oral (unwritten) spiel or the doc is ignorant.
The interval between treatments: 2x, 1x/week may mitigate the issue rather than receiving standard alternate days for five treatments?
Permanent seeds provides the optimal dose of radiation; whereas EBRT of any sort has to be suboptimal because the converging beams must
go through healthy tissue. 7 3+4 is also being surveilled as well so you should not necessarily be rushed into treatment. Go to PCRI.org and look up their YOU-TUBE videos on various Gleason scores.

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@thmssllvn Thanks for info. My Prostox said 95% SBRT and 5% IMRT. So are you saying I could do SBRT just spread it out more and even though the Grade 2 will start early it should resolve itself?

I’ve been on AS for about 10 mos now and it’s kind of driving me crazy and that’s why I’ve thought about doing Tulsa Pro to at least do something for it early. Figured this was the least quality of life option and was kind of an intermediate to AS and RT or RAP. Thoughts?

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Is the MiraDx report on ProsTOX original? Mine said LOW risk SBRT, LOW risk IMRT. Double check with the company in case, It doesn't make sense: "Distrust and Verify" Condoleezza RICE paraphrasing RR. The SBRT ( form of EBRT ) intervals are typical every other day. As a layperson, possibly incorrectly, I think lengthening the interval may reduce the risk of DELAYED urinary tract symptoms. It is mere speculation. Surgery: not recommended, Permanent seeds gives the optimal glandular dose. I suggest you look at the relevant PCRI.org YOU-TUBE videos. Brachytherapy, Gleason 7, etc, newer dates more useful as there is a moving target in prostate research

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I am just a few days till my two years since Tulsa Pro (with Dr Scionti Sarasota, FL), if one qualifies or in some cases pay, it is the best way to go.

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Profile picture for bjroc @bjroc

I am just a few days till my two years since Tulsa Pro (with Dr Scionti Sarasota, FL), if one qualifies or in some cases pay, it is the best way to go.

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@bjroc Do you notice an improvement in urinary stream strength or ability to urinate after your Tulsa Pro procedure?

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Profile picture for WingNut @ucfron

@bjroc Do you notice an improvement in urinary stream strength or ability to urinate after your Tulsa Pro procedure?

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@ucfron Keep in mind the Tulsa procedure will swell things for a few months, so in the short term you might need the alpha blocker and so on to help the pee be easier, but after that it should be good and improved, some take longer some quicker to get there but those first months are still dependent on alpha blocker.

Yes you will hesitate less, be more complete when done is how I describe it, so part of that is the stream strength, part is once you go you complete fully.

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Profile picture for WingNut @ucfron

@bjroc Do you notice an improvement in urinary stream strength or ability to urinate after your Tulsa Pro procedure?

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@ucfron it is constrained for a few months after treatment but I definitely have better stream (I can actually stand a bit away from the urinal) 😉
Also I only have to get up once per night now as opposed to 2-3 times prior to Tulsa.

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I was just on one year MRI follow up video conference with Dr Pathak last week. My Tulsa Pro with him was done on 9-11-24. My PSA pre-op was 12. Lower with each test, it’s now down to 1.9. MRI indications negative for lesions. My prostate is now one half its original size. Erections normal. Volume of ejaculate somewhat less. 75 year old patient.

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