@irenemargaret - These experiences definitely make you question the medical care we are receiving. I have been repeatedly told how "rare" vulvular cancer is - maybe this is the reason for all of the misinformation.... All I know is that it made an already stressful situation worse. I thought seeking a female gynecological oncologist would make it easier. Unfortunately it did the opposite. When I asked if there were alternatives to removing "everything," I was told "I am a surgeon, I cut, it's what I do...." That in itself is horrifying. They certainly can't put it back if they take something they should never have removed. I found both of them to be blunt, callous and unfeeling when delivering totally life-altering news.