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Anyone on Calquence as first line treatment for MCL?

Posted by jda28 @jda28, Jul 27 4:34pm

My 33 year old daughter was diagnosed 5/13/25 with MCL as confirmed through tonsillectomy pathology report.
Stage 3 shifted to stage 4 after bone marrow biopsy shows limited involvement. Treatment plan is Calquence BTK Inhibitor followed by CAR-T Cell Therapy.

I’m glad to have found this support group. Wishing everyone well.

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balvare | @balvare | Oct 25 12:01pm
In reply to @loribmt "@balvare. I’m so sorry to hear about the loss of your daughter. That’s incredibly tragic and..." + (show)
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@balvare. I’m so sorry to hear about the loss of your daughter. That’s incredibly tragic and difficult under any circumstances but having children left behind is so heart-wrenching. Certainly understandable why you’re so concerned about your own continued good health right now. Taking care of your grandchildren is a full time job. And I dare say a good distraction. But it’s the quiet times when you’re alone with your reflections that gives you time to ponder all of the ‘what ifs’… This is where it’s important mentally wad up the negative thoughts and toss them in a basket! Replace them with one or two positive thoughts. It’s amazing how easy it becomes the more you do it.

Tell me a little about your daughter. What type of cancer did she have? How old are your grandchildren?
I think being optimist about how well you’re doing right now is a good place to start.

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@loribmt We lost her to a rare form of eye cancer, ocular melanoma 6 years ago. It was the most heart wrenching and difficult experience of my life. I promised I would take care of her babies. One is 21 year old girl who is autistic, a 17 year old boy who is now a senior and a 10 year little girl. I love them so much. They have been my reason to continue in this world without my daughter Cheri. I hate that the word cancer is back in my grandbabies life. They have been through so much.

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Mentor
Lori, Volunteer Mentor | @loribmt | Oct 25 1:23pm
In reply to @balvare "@loribmt We lost her to a rare form of eye cancer, ocular melanoma 6 years ago...." + (show)
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@loribmt We lost her to a rare form of eye cancer, ocular melanoma 6 years ago. It was the most heart wrenching and difficult experience of my life. I promised I would take care of her babies. One is 21 year old girl who is autistic, a 17 year old boy who is now a senior and a 10 year little girl. I love them so much. They have been my reason to continue in this world without my daughter Cheri. I hate that the word cancer is back in my grandbabies life. They have been through so much.

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Oh my goodness, @balvare, I can’t even imagine the devastation you’re feeling over this traumatic loss of your daughter from such a rare cancer. This must have been incredibly difficult for Cheri, knowing she was leaving her 3 children without their mom. You’re a godsend to be able to take care of those grand babies for her. I’m so sorry that ‘cancer’ word is back in your life but you doing really well on this medication. So there’s no reason to think otherwise! You are an amazingly strong, resilient grandmother and through her children, Cheri’s legacy lives on. Sending a gentle hug.

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