Revlimid and colonoscopy.

Posted by jrsav @jrsav, Oct 27, 2023

I had a colonoscopy 7:30 am, yesterday.
I don't think proper attention was given to the fact that I am on Revlimid and already had diarrhea.

It's been terrible since.

I should have quit Revlimid until I had the colonoscopy. Or just skipped the colonoscopy.

If you're having diarrhea related to Revlimid, I recommend being very careful about how you go about the cleansing associated with a colonoscopy.

This is terrible. I'm wide open to suggestions.

I'm choosing to NOT add a photo. You can thank me later

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@jrsav So, I'll say "thank you" in lieu of a picture! I have been on a break from Revlimid since May for my multiple myeloma, but I continue to have gastric upset. It could be a new-permanent-for-me thing, could be a side effect of dialysis, or meds, or everything combined! I know it is not real comfortable.

Thank you on behalf of all of us on Revlimid, for letting us know your experience. Is a bland diet helping at all? Or perhaps the anti-nausea meds your dr prescribed previously?
Ginger

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I have heard the side effects of Revlimid progressively worsen and can sometimes be permanent.

I'm doing much better today

I took the max of all the antidiarrheals I had here.
Cholesterimine, Clobestol, and the over the counter stuff.

I got the diarrhea stopped.
I just hope I'm not stopped up now.

I'm kind of scared for the next movement. I'm still very tender. LOL

A. Lot of preparation H hasn't helped much

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Profile picture for Ginger, Volunteer Mentor @gingerw

@jrsav So, I'll say "thank you" in lieu of a picture! I have been on a break from Revlimid since May for my multiple myeloma, but I continue to have gastric upset. It could be a new-permanent-for-me thing, could be a side effect of dialysis, or meds, or everything combined! I know it is not real comfortable.

Thank you on behalf of all of us on Revlimid, for letting us know your experience. Is a bland diet helping at all? Or perhaps the anti-nausea meds your dr prescribed previously?
Ginger

Jump to this post

REPLY
Profile picture for Ginger, Volunteer Mentor @gingerw

@jrsav So, I'll say "thank you" in lieu of a picture! I have been on a break from Revlimid since May for my multiple myeloma, but I continue to have gastric upset. It could be a new-permanent-for-me thing, could be a side effect of dialysis, or meds, or everything combined! I know it is not real comfortable.

Thank you on behalf of all of us on Revlimid, for letting us know your experience. Is a bland diet helping at all? Or perhaps the anti-nausea meds your dr prescribed previously?
Ginger

Jump to this post

@gingerw
I must be one of the lucky ones because I've been on Revlamid for 26 months with no side affects.

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Profile picture for jrenjr @jrenjr

@gingerw
I must be one of the lucky ones because I've been on Revlamid for 26 months with no side affects.

Jump to this post

@jrenjr Welcome to Mayo Clinic Connect! I am glad to hear you don't have side effects from your Revlimid meds. There certainly are those lucky people like you! And it proves once again, that our meds can result in a variety of responses/reactions.
Ginger

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In reply to @jrenjr "@gingerw" + (show)

I finally quit Revlimid all together.

Fortunately, I returned to normal rather quickly

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