@hatterasj10202, Your story continues to get more complicated. These therapies are hard on our bodies. I'm sorry to hear that you have not found one that has provided a longer break from the stress of having tests and the side effects of the meds.
With the unique nature of the exon 14 skip, are you being treated at one of the large research-based clinical institutions? Do you feel that your oncologist is an expert in this area? Have you had a second opinion, or do you feel the need for one?