Hi @balvare, I know early in a treatment it’s such a time of uncertainty and we look for any ray of hope we can find. Despite not being able to continue with the Rituximab, from what you’ve mentioned, you’ve had positive results with remission for 8 weeks with the targeted therapy drug, Calquence.
Taking a break from everything but the Calquence is allowing your body to recover from the previous reaction. Your doctor is monitoring you closely through these current treatments. They will be in the position to notice any potential changes and can then discuss other treatment plans if necessary. But as long as you’re stable there is no reason to let doubt creep in.
IF something changes, THEN your doctor will take care of it. Worrying won’t change the outcome but it will rob you of peace of mind. Now is the time enjoy your life in remission.
There is another discussion in the forum with a member who has MCL receiving Calquence. Here is the link:
Anyone on Calquence as first line treatment for MCL?
https://connect.mayoclinic.org/discussion/anyone-on-calquence-as-first-line-treatment-for-mcl/
Other discussion with mentions of Calquence are listed here: https://connect.mayoclinic.org/search/
From my own experience, I found it really helpful to not let my mind wander to ‘what ifs’. Those negative thoughts can rob you of so much energy, creating unnecessary stress and anxiety. Try refocusing your thoughts with positive affirmations, meditative sessions, maybe some art therapy, nature walks, etc., all of those things allow for incremental healing and are good coping skills to get you through this!
What thoughts has your doctor expressed about Calquence as your solo medication right now? Are you tolerating it well?
Thank you. I am grateful for being in remission, but I tend to worry a bit about how effective the monotherapy is long term. I lost my daughter to cancer & am currently raising my grandchildren. I hope to be around long enough to get them raised. I have been tolerating Calquence. No major side effects.