← Return to AML successful treatment

Discussion
lindagi avatar

AML successful treatment

Blood Cancers & Disorders | Last Active: Oct 21 1:33pm | Replies (67)

Comment receiving replies
Profile picture for jacklyn @jacklyn

Hi Lori: it’s been awhile since I wrote to you. I just finished cycle one of venetoclax 14days and vidaza 7 days. With infusions as part of the treatment and pill form. I am off this week of both medications. I am waiting to do a blood test this week to see if I can have a bone marrow biopsy to see how the treatment is doing. My blood counts after my treatments were my red snd white ok but platelets 19. My oncologist did warn me your counts will go down at first. So I hope this week they come up so I can do the BNB.
I also was put on valaclovir 500mg twice a day and
Lefloxican 500mg antibiotic and pasconazole x 3 which is 1000,00 and had to be approved by the government. I pay nothing. I live in Quebec Canada. I was put on all this because of the high risk of infection from taking venetoclax. Have you heard of any of these drugs. I am 77 and not a candidate for transplant.
I feel so sorry for the dad who caught a cold. I am just wondering if they gave him medication to help the risk.
Have you

Jump to this post


Replies to "Hi Lori: it’s been awhile since I wrote to you. I just finished cycle one of..."

Hi, @jacklyn! Thank you for the update! Well, your first cycle of V&V is complete…first step to getting this AML under control. During the next week or so, as your oncologist mentioned, you will see a decrease in your blood counts. The chemo is designed to interfere with rapidly dividing cells like cancer cells. However, it’s not discriminatory so it also can temporarily kill off blood cells until they start regenerating about mid month in the cycle. Occasionally if the drop in platelets and red blood counts are too low, transfusions may be given to help bring levels to a more normal level.

And of course, as you already know, with the all important neutrophil level being low, that puts you at a risk for infections from bacteria, viruses and fungi…so your doctor has put on you key meds to help keep you safe. I was on all of those that you listed. They kept me safe, along with my mask, for a long time! I know it feels like you’re a walking pharmacy right now but it’s an all important temporary immune system for you! As we joke in my house…Better living through chemistry! 😅

One thing that also really helped keep my guts happy through all of the chemo was to have daily servings of non-fat plain Greek yogurt. I’d add fruit or a tiny bit of jam (and a teaspoon of ground flax) to make it more palatable. It really helped keep my intestines happy and added protein to my diet.
Fingers crossed for improved blood numbers so you can have the BMB to check your progress. Sending positive vibes for only good news…will you let me know please? ☺️