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@tawakol Oh golly, this wasn’t the news I was expecting to see about your dad. AML can be such a tricky beast and treatment isn’t a ‘one size fits all’; What works for some patients may not be the magic for others. We’ll be optimist that this new treatment plan will help reduce you dad’s blast cells and get him into a more manageable situation. Don’t lose hope…my blast cells at the time of diagnosis were 85%.
What an unfortunate time to get a cold. Keep an eye on his temperature if he’s at home. Like you mentioned, with his lack of immunity he is very vulnerable to infections. So if his temperature gets to 100.3 make sure there’s a call into his oncology team for direction. That can be an indication of an infection.
Sending you a hug in support. I know this isn’t an easy time as a caregiver. When you get a chance, please let me know how your dad is doing on his new treatment, ok?
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Hi Lori: it’s been awhile since I wrote to you. I just finished cycle one of venetoclax 14days and vidaza 7 days. With infusions as part of the treatment and pill form. I am off this week of both medications. I am waiting to do a blood test this week to see if I can have a bone marrow biopsy to see how the treatment is doing. My blood counts after my treatments were my red snd white ok but platelets 19. My oncologist did warn me your counts will go down at first. So I hope this week they come up so I can do the BNB.
I also was put on valaclovir 500mg twice a day and
Lefloxican 500mg antibiotic and pasconazole x 3 which is 1000,00 and had to be approved by the government. I pay nothing. I live in Quebec Canada. I was put on all this because of the high risk of infection from taking venetoclax. Have you heard of any of these drugs. I am 77 and not a candidate for transplant.
I feel so sorry for the dad who caught a cold. I am just wondering if they gave him medication to help the risk.
Have you