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Has anyone had hearing loss after Azacitidine injections?
Blood Cancers & Disorders | Last Active: Nov 7 6:14pm | Replies (5)Comment receiving replies
We have several members in the forum who are receiving Vidaza treatments for their MDS or AML. While waiting for some of them to respond to your question about hearing loss as a side effect, I wanted to welcome you to Mayo Connect.
What a frightening experience for your husband (and you) to have this unusual reaction to the medication. There are drugs which can cause ototoxicity as discussed in this conversation posted by a fellow mentor, @julieo4 a few years ago:
~Ototoxic drugs that can cause hearing loss or tinnitus https://connect.mayoclinic.org/discussion/ototoxic-drugs-that-can-cause-hearing-loss-or-tinnitus/
I’m so sorry this has happened to your husband. I know you’re already feeling like you’ve been clipped off at the knees with this newly diagnosed MDS so you didn’t need more concerns added to your plate. You’ve joined an amazing support group and we’re here for you and your husband any time.
Wishing only good news with the results of his bone marrow biopsy. Will you let me know what you find out please?
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@loribmt
After the hearing loss and the Vidaza injections stopped on day 3, we were sent to see a ENT. He had an exam, and hearing test. Test showed that he had total loss in one ear and partial loss/frequency difference in the other ear. Nobody knows why. He was put on a strong steroid for 8 days and then a taper down. His hearing did improved some, although not back to normal. I noticed, on his chart the final results we have been waiting on were posted, the cytogenetic and mutations. He has the TP53 mutation, multi hit, complex karyotype. From everything I have researched it is not good. He is scheduled to see the oncologist/hematologist on Monday at which time I expect him to give us this information. He was also scheduled to start injections again Monday but I have a feeling his treatment may be altered. Right now I am holding my breath, hoping for any good to come out of this, although not very hopeful. My husband is unaware of the results, since I decided not to share them with him and let the doctor give us the final results, just in case I am going to the worst case scenario out of fear. We live in one state due to my husband's work and were just two years short of his retirement, but plan to move back to our home state of NC at the end of February. I am not sure how all of this will alter our plans now. We are closer to MD Anderson now, but have no family support here and that is why he has chosen to move back to NC. Duke is probably where we will most likely seek treatment once we move back. I will post again after I find out what the doctor relays to us.