← Return to Thinking about stimulator or pain pump for chronic lumbar pain

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Profile picture for laura1970 @laura1970

The meds in a pain pump don’t need to cross the blood brain barrier as they are placed directly into the central nervous system.

I had a Medtronic pain pump and developed arachnoiditis because of it. This is a terrible disease causing inflammation of the thin lining around the spinal cord. The pain is much worse than the pain that led me to the pump and I can’t sit for more than 20 minutes. There is no treatment and little research is ongoing. It is progressive with advanced cases confined to wheelchair and in agony. It’s been 5 years and I have yet to find a doctor with any experience.

It is a rare complication, but becoming less so as spinal procedures become more common. Had I known, I never would have had one placed.

And by the way, when the pump was removed, went through 3 weeks of terrible opioid withdrawal.

I would discuss this complication with your doc. They didn’t even list it on my authorization sheet

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@laura1970
I had a pain pump for 20 years. Had to have it removed. I too, have adhesive arachnoiditis, most likely from the pump and irritating effects from the meds. I got my PCP to prescribe Indomethacin. It is the only thing that helps my arachnoiditis. If I had to do it all over again, I would not have a pump or the stimulator implanted.