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DiscussionDoes anyone else have MCTD with systemic sceladerma? Anyone else?
Autoimmune Diseases | Last Active: Oct 19 2:56pm | Replies (13)Comment receiving replies
Replies to "@sonnyforee10 my first surgery did work. I had no pain except for at the surgery site...."
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@grandmal65 wow you have been thru it all!! I must say I’m not looking forward for mine to progress I was diagnosed with systemic sceladerma 9 months ago and mctd a yr ago. I do follow a special diet about 21 days out of 30. My dr said I could cheat about 1 a week. I hope she’s right. Right now I have no stomach issues and I don’t want any. I feel so bad for you!! Do you have Raynaud also? I do and it’s worse in the toes. We live in Ohio so cold is just around the corner. Not looking forward to it. I also have a small pericadal effusion of heart. It sounds like we are both are going to go thru a lot of things. Believe me I know about shrugging g your shoulders. I’m like how many auto immune diseases can one have? I already donated my body to wright Patterson medical school. If I can save 1 person from this hell it’s worth it. My husband did the same. Please let me know how your surgery goes and I’ll be praying for you’re ❤️🩹. I’m.looking up watermelon stomach and it sounds crazy. Again stay in touch and good luck with everything🤗