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@sonnyforee10 my first surgery did work. I had no pain except for at the surgery site. But the past 3 or 4 months the pain going from neck down top of back in to my shoulders. So the doctor did another MRI. So from C4-C5 is fine but C6-C7 is now messed up along with T1 - T2.

Systemic scleroderma diagnosis came about 3 years ago. The gastric bleed led to an EGD and GI doctor found that I have watermelon stomach. It's where your blood vessels are directly seen inside the stomach and not embedded in the tissue like normal. So food can scrape and inflamed them and make them bleed. So no spicy food, or alcohol or fried food. I seriously have to watch what I eat. Note: watermelon stomach actually has stripes like watermelon. Look it up, it's crazy. After my Rheumatologist got with the GI doctor she was going through all my health issues and diagnosed me. I take a drug called Bentyl which helps with my stomach pain. Heartburn is a chronic issue for me. I also get a chest and abdominal CT every 6 months to check my internal organs because of the systemic scleroderma. I have some fibrous tissue in the left lower lobe of my lung and swollen part of my heart that they have to watch. I'm going through a lot. I'm at the point of rolling my eyes, and just shrugging shoulders to say, "what's next, and why not"?? Seriously thinking of donating my body to hopefully help medical school doctors learn from these conditions.

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Replies to "@sonnyforee10 my first surgery did work. I had no pain except for at the surgery site...."

@grandmal65 wow you have been thru it all!! I must say I’m not looking forward for mine to progress I was diagnosed with systemic sceladerma 9 months ago and mctd a yr ago. I do follow a special diet about 21 days out of 30. My dr said I could cheat about 1 a week. I hope she’s right. Right now I have no stomach issues and I don’t want any. I feel so bad for you!! Do you have Raynaud also? I do and it’s worse in the toes. We live in Ohio so cold is just around the corner. Not looking forward to it. I also have a small pericadal effusion of heart. It sounds like we are both are going to go thru a lot of things. Believe me I know about shrugging g your shoulders. I’m like how many auto immune diseases can one have? I already donated my body to wright Patterson medical school. If I can save 1 person from this hell it’s worth it. My husband did the same. Please let me know how your surgery goes and I’ll be praying for you’re ❤️‍🩹. I’m.looking up watermelon stomach and it sounds crazy. Again stay in touch and good luck with everything🤗