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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @chocolategirl. I’m sure you and your doctor were relieved to see your liver numbers back to normal after adjusting the treatment schedule. Hopefully your side effects will also start subsiding. Sometimes it can take a little tweaking to get the dosages just right…the happy balance. How often do you have labs?

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Replies to "Hi @chocolategirl. I’m sure you and your doctor were relieved to see your liver numbers back..."

Hello @loribmt - I have labs every 4 weeks. I am going tomorrow so we'll see what's up. There have been times over the past 2 years when I have felt great for long periods of time but my blood work didn't look so good, so it's a little disheartening to not feel good and my blood says I should be ok. I expected it to take a while to get the balance right between strong enough to kill the bad stuff in my blood and not too strong that the side effects made me miserable. I'm sure we'll get there. The hard part is like I've seen on other posts - the doctors seem to think with ET that our symptoms should go away once we're on meds and I felt kinda crazy when they didn't.