← Return to Parkinsonism Traits with No Diagnosis I’m Frustrated, Anyone else?

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@hopeful33250
I am 73 years old and when I was 63, I was diagnosed with artery spasms that eventually required early retirement from working. (I was an oncology chaplain working in three outpatient clinics). March of 2025, I had a follow up with my cardiologist and during the visit a fellow he had working with him examined me and said, (Has anyone talked to you about Parkinson Disease)?"Four months later I was seeing a neurologist who diagnosed me in his office. He also scheduled the skin biopsy test. I had to wait about three weeks for the insurance to approve the test. After the test, it takes around 3 weeks to get result. Result was 95% positive. I was started on Carb/Levo 25-100 mg tablets, three times a day. Nausea was bad and additional 25 mg of Carbidopa was added which helped. Due to restless leg syndrome, Pramipexole 0.25 was prescribe for one week then doubling dose. Worked extremely well. Physical therapy is scheduled starting November 18th. It has been a whirlwind; however, my neurologist is right on top of this and I wouldn't want it any other way. My heart goes out to those folks that I am reading about who have waited and struggled to get the right diagnosis. I am finding the progression to be fairly rapid. Balance is bad, speech is getting blurred, cognition is confused. I have horrible dreams. I experience bouts of fatigue almost daily and after being active, it is difficult to accept that I am slowing down. Great support from family and friends. Thank you for letting me share and join this group of extremely brave individuals along with their caregivers.

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Replies to "@hopeful33250 I am 73 years old and when I was 63, I was diagnosed with artery..."

@davemc thank you for sharing your experience! I was recently diagnosed with early Parkinsons. I have not had the skin biopsy yet, but I’m pretty sure my diagnosis is correct. I’m also fortunate that the carbidopa/levadopa is working well for me at the moment. I’m taking a break from the as you so aptly describe “whirlwind” of testing, scanning, etc.
I have most of the issues you bring up. Having been physically active most of my life I too have been finding it hard to accept my new limitations. Especially the balance, coordination, and cognitive anomalies.
If you have any interest I highly recommend warm water exercise classes. It lets me work out as hard as I want (which does wonders for my mind- I feel free again) without the concern of falling. The warm water eases the aches in my rigid muscles and old bones.
Though medical science still has a long way to go, I feel blessed to live in this time which offers so much, compared to my uncles journey 40 years ago.
I am also grateful for what this experience has and continues to teach me.
Hugs and encouragement to you!

@davemc and @janna2,

It was nice to hear from you both and to know that you are being helped by medication and exercise. I would also add the idea of speech therapy. It really helps with voice problems as well as swallowing difficulties. I've had several sessions with speech therapists, and they are really unsung heroes to PD patients.

I look forward to hearing from you both again as you deal with these symptoms.