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Profile picture for grandmal65 @grandmal65

Call doctor back and get back in so you ask your questions. Contact the nurses line and say you have questions and they are very important to you. After all, we're just the patients. I have systemic scleraderma with my Lupus. But mine is attacking my stomach. Have had 4 bleeds in 2.5 years. Last one was in February. Was diagnosed after my first bleed 3 years ago where my gastrointerologist found I have watermelon stomach.

Please feel free to message me. Praying for you. Not an easy diagnosis at all.

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Replies to "Call doctor back and get back in so you ask your questions. Contact the nurses line..."

@grandmal65 Hi and thanks for reply how do you know you’re systemic sceladerma is in overdrive? And may I ask what are your CK levels. And is the stomach the only troublesome area? Thanks again I’ll be wiring n reply