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MAC & Bronchiectasis | Last Active: 58 minutes ago | Replies (131)
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@scoop Thank you for responding! It was his NP that was relaying his message to me. They won’t let me see the specialist listed on the NTM CENTERS because I see someone in that practice, who self admitted it’s not his forte. Very frustrating, especially when you’re not feeling well.
Be well,
Deidre
Replies to "@scoop Thank you for responding! It was his NP that was relaying his message to me...."
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@dstella Two things, immediate and longer term.
1) The first priority is to get you feeling better. Contact your current pulmonary doctor through the portal and describe your symptoms. As a reminder symptoms of an exaggeration include: increased cough and sputum, SoB, chest tightness, fatigue, low grade fever, feeling unwell, malaise. Likely, you'll need to drop off a sputum sample so make sure you request that.
2) Longer term (after you are feeling better) Call the office again to request changing docs. If the office refuses to let you change doctors, after one more try, it's time to get the patient ombudsmen involved. You, the patient, are the reason doctors and their team have jobs. Speak with the supervisor or get a call back from supervisor. Be sickly sweet! Ask to schedule or move your care to Dr. Christoper Richards, who is listed on the NTM Bronchiectasis Centers as a bronchiectasis expert. If you are denied it's time to pursue the patient ombudsmen route. You'll need to google how to go about that.
Hope this helpful and you feel better soon.