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Brinsupri follow-up

MAC & Bronchiectasis | Last Active: 58 minutes ago | Replies (131)

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Profile picture for pacathy @pacathy

@dstella From what I see, the guidelines are that it for noncystic fibrosis patients who have had two exacerbations requiring antibiotics in past year. Is that your situation?
I would not qualify now because I haven't needed antibiotics in a year. I think I would have the previous year.

Do you have a standing order to send a sputum culture if you’re having increased sputum or fevers?

I agree with Scoop about contacting your doc's office since you're feeling sicker. I also agree that a doc well versed in bronchiectasis makes a big difference.

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Replies to "@dstella From what I see, the guidelines are that it for noncystic fibrosis patients who have..."

@pacathy Thank you for your reply! I definitely fit all that criteria. I have been on multiple antibiotics and steroids and hospitalized this year. And pretty much every year. I have BE, NTM, Aspergillosis and asthma.
I wish they would let me see Dr O’Donnel who is listed on the NTM CENTERS OF EXCELLENCE but, they absolutely will not let me switch physicians.
I was so excited about the news of having those centers and now I can’t see the Dr recommended.
Frustrating to say the least.
I hope others have better experiences than I have had.
Stay well,
Deidre