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Next month, I mark 43 years since I was diagnosed with breast cancer.

Posted by rjp27 @rjp27, Jul 20 3:15pm

Next month, I mark 43 years since I was diagnosed with breast cancer. I am very thankful for all the things I’ve experienced during these bonus years. Newly diagnosed people have often crossed my path, and I have had the privilege of encouraging them with not only my longevity but also quality of life. Any other longterm survivors out there?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

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engelwags | @engelwags | Oct 4 9:00am
In reply to @susansh "@llthomson Yes, I did and do still have the tests. They show + ctDNA - most..." + (show)
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@llthomson
Yes, I did and do still have the tests. They show + ctDNA - most likely due to the mets to the bones. BUT, once again, I have zero (0) bone pain and some of the lesions are 4 to 5 cm in my spine and pelvis. I do not feel ill and bloodwork is perfect.

The Altera Tumor Genomic Alterations test showed only one possible genomic target BUT the report states that there are "NO FDA approved drugs for patient's cancer," "NO FDA approved drugs for other cancers [with this alteration]," and "ZERO Drugs Predicted Non-Beneficial" (but I am allergic to previously offered drugs). There is one possible clinical trial but I do not qualify.

There are other DNA amplifications noted w/"prognosis poor" and NO FDA approved Drugs as well as stating that AIs and Immunotherapy would not be beneficial.

It is a good thing that I live by,
"Sticks and stones may break my bones...but words will never hurt me!"
I feel and look so healthy that you would not be able to pick me out of a crowd as a person who has Stage 4 cancer.

I say to you - Chin up, learn, research, take care of yourself/body/mind/spirit and do not let words or predictions rule you!
Keep putting one foot in front of the other and put the diagnosis at the back of your mind so it does not interrupt all of the good things that you will do today. You have so much love and life inside of you... and so much to share!
Not one person on this Earth is guaranteed tomorrow.....do not waste today!
Be strong....be a tiger.....ROAR because today is YOUR day!!!
Get out there and You do YOU!!! 🙂
Much love to you, my friend!

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@susansh What an incredible gift of positivity you have! I want to print your post on a poster and put it on my wall!!!
Thanks for sharing your light with all of us!

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llthomson | @llthomson | Oct 4 9:28am

I am humbled by your strength. Thank you for being here for us now. Lots of love to you.

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susansh | @susansh | Oct 4 10:13am
In reply to @engelwags "@susansh What an incredible gift of positivity you have! I want to print your post on..." + (show)
Profile picture for engelwags @engelwags

@susansh What an incredible gift of positivity you have! I want to print your post on a poster and put it on my wall!!!
Thanks for sharing your light with all of us!

Jump to this post

@engelwags
Print away, my friend...Print away!!! Post it everywhere because that is how we remain strong...sharing, caring, having faith and living today as though we will share the experience with the angels tomorrow!!!
🙂

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susansh | @susansh | Oct 4 10:14am
In reply to @llthomson "I am humbled by your strength. Thank you for being here for us now. Lots of..." + (show)
Profile picture for llthomson @llthomson

I am humbled by your strength. Thank you for being here for us now. Lots of love to you.

Jump to this post

@llthomson
Many thanks, my friend! You can do this!!!
🙂

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susansh | @susansh | Oct 4 10:19am

Hello there,
You are so strong and good!
Keep sharing your encouragement with all of the newly diagnosed.
Your long experience must have so many aspects....I am proud of you for what you do.
You never know if your help will change someone...who will change someone...who will
change the world! What a gift you are!
Take care,
Always,
Susan

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angiemal | @angiemal | Oct 5 10:10am

@rjp27 Wow, this is truly inspiring! Do you have any advice for navigating the uncertainty that comes with a diagnosis? What changes did you make in your life afterward? And is the fear of recurrence or metastasis still something you live with?

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deltakid | @deltakid | Oct 5 10:10am
In reply to @trinhttt "May I ask what type of BC you had?" + (show)
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May I ask what type of BC you had?

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@trinhttt , I was diagnosed with invasive ductal carcinoma.

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