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Profile picture for northoftheborder @northoftheborder

@tjv1156 asked ❝why did your team say your cancer *will* return?❞

Because I'm stage 4: my cancer had already metastasised to my spine before it was diagnosed.

Received wisdom at the time was that castrate resistance on ADT would last only 18–24 months, then I'd have to progress to other measures like chemo or Pluvicto, and I'd die a couple years after that. But that was before there was as much data from new clinical approaches like starting on an ARSI early instead of waiting for castrate-resistance, treating oligometastatic cancer with "curative intent," etc. Things look much more promising for us now.

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Replies to "@tjv1156 asked ❝why did your team say your cancer *will* return?❞ Because I'm stage 4: my..."

@northoftheborder do you mind if I ask what your treatment was? Congrats on 4 years!!!!

@northoftheborder My oligometastatic cancer metastasized to my sacrum. It was radiated and I was put on Lupron and Abiraterone for three years and am still castrate sensitive. This past year I have been off ADT and my testosterone is returning. I have had PSA < .1 for four years now. My Gleason score was 3+5. I think that your doctor may have been seeing your situation somewhat negatively based on my personal experience, or maybe doesn’t want to build false hope. Personally, hope keeps me going and dealing with whatever happens.