Hello @gormanb and welcome to Mayo Connect. First, let me thank you for being a career dietitian. In my humble opinion, dietitians are part of the unsung heroes of the medical profession. I have had three surgeries of the upper digestive tract, and my meetings with registered hospital dietitians have been more helpful to me than any others on my medical team when it comes to eating plans after surgeries. I deal with what my GI doctor refers to as slow transit constipation, which is also very frustrating, so I understand a little about what you are experiencing.

I'm also glad that you finally have a diagnosis for a long-term problem that has eluded your medical team in the past. I understand that it is good to have a label to put on these troublesome health issues.

I found some information about this on the University of North Carolina website. Here is a link, https://www.uncrexcolorectalsurgery.com/colorectal-condition-information-raleigh/benign-colorectal-disease/colonic-inertia/

You do not mention in your post about ever having any surgery of the upper or lower digestive tract. Is my understanding correct?

We have numerous discussion groups on Connect that deal with constipation and other motility disorders. You might find them helpful. These discussions can be found by using the search bar at the top of your screen and typing in words like "constipation" or "motility disorders," and this will bring up a list of all of the posts that mention these words. You will likely find many helpful suggestions in these posts.

What other discomfort do you experience (beyond constipation) that is problematic for you?