Welcome @smazz6, Happy to see that you have connected with another fellow Long QT Syndrome patient @meredithes. There is an older discussion that I'm sure some of the members are still active on Connect that you might want to scan through. If you want to see if a member is still active, just click on the profile to the left of their post and it shows the last time they were active on Connect.

-- Long QT Syndrome: Want to connect with others: https://connect.mayoclinic.org/discussion/long-qt-syndrome/

A search of Connect also lists the Mayo Clinic Newsfeed Posts which has quite a few on the Long QT topic - https://connect.mayoclinic.org/search/newsfeedposts/,