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DiscussionHow to replace esomeprazole (Nexium) for epileptic son or take a rest?
Epilepsy & Seizures | Last Active: Sep 21 12:28pm | Replies (18)Comment receiving replies
Replies to "@kari33 Would you share what anticonvulsant/s your son takes? I assume he is taking his medication..."
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Hi Jake, my son is taking Clobazam, Levetiracetam, Sultiamo, and pharmaceutical-grade CBD. His seizures are usually complex partial seizures and last no longer than a minute, thanks to the excellent work of his neurologist. Occasionally, he may have tonic-clonic seizures, which are much more aggressive and indicate that something is wrong. He has experienced several seizure statuses, the longest and most worrying of which was when he was a year and a half old. Despite monthly blood tests, the medication he was taking (valproic acid) poisoned his bone marrow and caused many complications. His pharynx no longer functioned, and he needed a gastric button. It has been many years now. We have overcome some problems, but we must continue to fight.
Oh, and he only takes Sultiamo with food, the other medicines need to go two hours away from any food or he will throw up everything.