Diagnosed with T1c prostate cancer: When to tell doc about groin pain?

You should tell your doctor exactly what you are feeling and you should ask for a PSMA pet test right away because if you’ve got cancer in your bones, causing that pain, you need to find out soon.

A T1c is extremely minor and it sounds like you are not at that point if you’re having all this pain and it’s from bone tumors.

tleech, very good advice (again) from Jeff. The pain could be unrelated to the cancer, but could indicate metastasis. Tell your doctor, best not to wait till your next scheduled exam.

@tleech

I would absolutely tell your doctor. I agree with Jeff and Gentle. You won't know if it is or isn't something unless you investigate.

Did you have the gallium-68 PET Scan and the Decipher Test? If not, you need to in order to see if the cancer has in fact spread to your lymph nodes. If your pain is "lower lumbar back pain", you might have lymph node invasion. The PET Scan will reveal that. The one thing all men must be very cautious of, is what you think your cancer is like based on your biopsy. Your biopsy is a basic screening test to confirm through the core samples, that "yes, you have prostate cancer", with the offered Gleason score. But...that Gleason score does not tell you what your surgical pathology report will tell you when your prostate is removed.
My own urologist was all confident, saying: "we caught your cancer early, you'll be fine, but I am still taking your prostate." I reluctantly agreed based on his vehement disagreement with the concept of "actively monitoring for two years." Well...my surgical pathology report did not change my Gleason Score, but it launched me into a pT3b category because it revealed what the seemingly innocuous biopsy could have never revealed: Extraprostatic Extension ("EPE"), surgical margins, left seminal vesicle invasion, and Cribriform glands. All "not good."
The Decipher Test is a test that tests for 22 prostate-specific genes, and will tell you of your weighted, risk-stratified probability of metastasis at 5, 10, and 15 years, and present you a chart of where you are in terms of low risk, intermediary risk, or high risk. It is a score from 0.1 to 1.0. You definitely want to be less than .50, in fact, less than .25. The lower the better. I am dead in the middle with a .50 "Intermediate Risk." That number still yielded very low probabilities of metastasis for me, but the nature of being a pT3b means that my cancer will definitely return within the first five years post-op, especially because of the "surgical margins" (cancerous prostate tissue left behind in my body that is slowly growing "right now", and rear its ugly head when it decides to). Then I'll go for 40 consecutive days of radiation. Even though the two seminal vesicles and two vas deferens are removed with the prostate, the fact that the cancer invades the seminal vesicle(s) is a bad sign for recurrence. That invasion puts a patient in the pT3b category. Good luck with yours, but DEFINITELY get the PET Scan and the Decipher Test.