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Brinsupri (aka Brensocatib)

MAC & Bronchiectasis | Last Active: 47 minutes ago | Replies (160)

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Singulair worked great for me for about one week until I experienced heaviness in my body, as if it was hard to get out of a chair. Maybe that’s what depression feels like?It’s a rare side effect sadly, anyway, I had to discontinue.

Regarding inhaled steroids, I use Symbicort two puffs twice a day and when I get wheezy, I use an albuterol puffer. I take a lot of steps to avoid environmental triggers for asthma and allergies and NTM. HEPA Air Purifiers run in every room along with air conditioning. And a dehumidifier in the basement. Of course, twice a day airway clearance!

I wonder about the injectable biologics.

Close Follow up with pulmonary as I embark on brinsupri. Based on the webinar, I listened to yesterday if it’s going to work, I should notice symptom reduction within six weeks. I’m willing to take that risk.

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Replies to "Singulair worked great for me for about one week until I experienced heaviness in my body,..."

I have listened to two webinars on Brinsupri so far. But it is still not clear to me what symptoms we might notice improvement in after some time. Do you know? It does not seem clear what the actual benefits are that we might actually notice or experience. The main thing I heard early on was reduced exacerbations.

Keep us posted on how you feel, as I'm sure you will. I was on Symbicort a few years ago and my dr thought I'd do better on Trelegy-then I got MABC. I have an appointment with him this month and revisiting IC's is on the top of the list-but then if I get approval from Dr Haas (NJH dr), I might try the singular again. I'll post the 2025 NJH NTM BE Conference after it gets sent to me-hopefully these Brinsupri questions get answered. I'll try anything to get my inflammation down.