← Return to Longevity: I'm worried about rapid progression in lobes

Discussion
Comment receiving replies
Profile picture for mmhadcock @mmhadcock

My good friend died within one year of treatment for advanced BE and MAC at age 75. She was otherwise in good health. Her treatment plan was inadequate and delayed. She did not have a team who noticed her decline nor practiced by guidelines. I miss her every day and try to keep educated and compliant with treatment standards. It is necessary to advocate for yourself. I recently had a strong BE flare and sputum culture management omitted re ordering AFB after bronchoscopy, when doc knew I had a positive NTM from Quest 3 weeks prior. The opportunity to know if it is colonization, relapse after 2 yrs or re-infection was lost.

Jump to this post


Replies to "My good friend died within one year of treatment for advanced BE and MAC at age..."

I’m so so sorry you lost your friend. I have lost many and I know that feeling it is dreadful. I have lost many in their 60s from other diseases. Very scary.
Are you able to stay home with your flares?
I refused to go into the hospital again
I actually invested in supplemental oxygen in my bedroom, which I have never used, but just in case I need it. It gives me some reassurance. It cost me 150 a month and we’ll worth it.