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ANY LYME DISEASE SUFFERS OUT THERE?

Posted by sundancerdb78 @sundancerdb78, Aug 27 11:33am

I came down with what doctors and we decided was Lyme Disease 8 years ago!
I still have "EPISODIES" where i hurt all over or in a particular spot and extreme fog and dizziness! I take Oxycodone to help my headaches that I have had from the beginning! The rest I have to live with!
I subscribe to the Lyme web pages! Always looking for answers!
I guess I'm reaching out for some new things or research someone has done to help! Or just some help dealing with it!
In doing my initial research 8 years ago I read a quote, "you can put 30 people in a room with Lyme and they will have 30 different symptoms!"
My last PCP , that I fired, said he talked to 2 infectious disease doctors and they said that "LYME DOES NOT EXISIT!"
It's very frustrating to have your life turned upside down and so many people don't understand!
Thanks, RB

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sundancerdb78 | @sundancerdb78 | Sep 3 11:57am
In reply to @sundancerdb78 "John thanks for the follow-up articles! They dispel many beliefs our ordinary PCP's have with Lyme!..." + (show)
Profile picture for sundancerdb78 @sundancerdb78

John thanks for the follow-up articles! They dispel many beliefs our ordinary PCP's have with Lyme!
Interesting historical Fact! When they examined the body of the "ICE MAN" found in the Alps that he was 5,000 years old, he had Lyme Disease!
Please everyone try and comment on your experiences and information you may have about Lyme.
It may not help us who have "LATE STAGE" OR "CHRONIC LYME"!
But help someone who maybe newly infected!
THANKS,
SUNDANCE, aka RB

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To those who question the validity of Lyme, please read the articles John included in his post! And that of others who have learned to survive with Lyme!
THANKS,
SUNDANCE aka RB

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leew01 | @leew01 | Sep 3 8:09pm
In reply to @johnbishop "Welcome @leew01, I'm not a doctor but I think that Lyme Disease can be difficult to..." + (show)
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Welcome @leew01, I'm not a doctor but I think that Lyme Disease can be difficult to diagnose like a lot of different conditions and that just adds a lot of confusion for people that may have the condition. Here are a couple of references on Lyme Disease:

-- Mayo Clinic expert speaks of significance of Lyme disease uptick:
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-expert-speaks-of-significance-of-lyme-disease-uptick/
-- Lyme disease misinformation has physicians searching for guidance:
https://www.ama-assn.org/delivering-care/public-health/lyme-disease-misinformation-has-physicians-searching-guidance
-- Medical Gaslighting and Lyme Disease: The Patient Experience:
https://pmc.ncbi.nlm.nih.gov/articles/PMC10778834/
Have you been diagnosed with Lyme Disease?

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Thanks for the info. No, I haven't. I tested positive for ANA's but nobody can tell me what I have.

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leew01 | @leew01 | Sep 3 9:00pm

It's frustrating to say the least.

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covidstinks2023 | @covidstinks2023 | Sep 4 5:22am

Sundancerdb78, Hey There! I have a dear fried who has severe Lyme Disease with mold toxicity. He went to a Lyme Disease Center in Florida that helped him greatly. I will get the name if you want me too. It was out of pocket.

I must say, they saved his life as he was in such bad shape. He also had been told there was not such thing as Lyme Disease in his state. This disease has reeked havoc on his body, but, I will say they helped him there.

Praying for you this a.m. Blessings & Prayers....

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bruizersmom | @bruizersmom | Sep 4 2:54pm
In reply to @johnbishop "Welcome @leew01, I'm not a doctor but I think that Lyme Disease can be difficult to..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

Welcome @leew01, I'm not a doctor but I think that Lyme Disease can be difficult to diagnose like a lot of different conditions and that just adds a lot of confusion for people that may have the condition. Here are a couple of references on Lyme Disease:

-- Mayo Clinic expert speaks of significance of Lyme disease uptick:
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-expert-speaks-of-significance-of-lyme-disease-uptick/
-- Lyme disease misinformation has physicians searching for guidance:
https://www.ama-assn.org/delivering-care/public-health/lyme-disease-misinformation-has-physicians-searching-guidance
-- Medical Gaslighting and Lyme Disease: The Patient Experience:
https://pmc.ncbi.nlm.nih.gov/articles/PMC10778834/
Have you been diagnosed with Lyme Disease?

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I've had a cousin diagnosed. She has now died from it. A former neighbor is homebound because of it. Both had trouble finding a correct diagnosis, had to search doctors and listen to absurdities ("It's all in your head" See a psychiatrist. ... and more)

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sundancerdb78 | @sundancerdb78 | Sep 4 3:45pm
In reply to @bruizersmom "I've had a cousin diagnosed. She has now died from it. A former neighbor is homebound..." + (show)
Profile picture for bruizersmom @bruizersmom

I've had a cousin diagnosed. She has now died from it. A former neighbor is homebound because of it. Both had trouble finding a correct diagnosis, had to search doctors and listen to absurdities ("It's all in your head" See a psychiatrist. ... and more)

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B-MOM, Sorry for your loss! Can I ask how she died? What were her finial symptoms?
I have lost over 30 lbs. But I still eat! My vision is detartrating, My energy level is going down! Have trouble walking both physically in endurance and balance. Constant Brain Fog! Many other symptoms!
I guess I shouldn't complain! My parents only lived until 68 and I am 79!
Have played golf for 70 years all around the world! Fished some Great Trout Waters for 70 years! And skied some Great Mountains for 50 years!
I guess what I am saying is Yes Lyme is a Horrible disease! But I have a lot to be Thankful for!
BLESS YOU ALL!
THANKS!
SUNDANCE aka RB

REPLY
Profile picture for sundancerdb78
sundancerdb78 | @sundancerdb78 | Sep 5 11:52am
In reply to @covidstinks2023 "Sundancerdb78, Hey There! I have a dear fried who has severe Lyme Disease with mold toxicity...." + (show)
Profile picture for covidstinks2023 @covidstinks2023

Sundancerdb78, Hey There! I have a dear fried who has severe Lyme Disease with mold toxicity. He went to a Lyme Disease Center in Florida that helped him greatly. I will get the name if you want me too. It was out of pocket.

I must say, they saved his life as he was in such bad shape. He also had been told there was not such thing as Lyme Disease in his state. This disease has reeked havoc on his body, but, I will say they helped him there.

Praying for you this a.m. Blessings & Prayers....

Jump to this post

Thanks for the info!
Have a good last week of vacation!
SUNDAANCE aka RB

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