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Hemiplegic migraine

Headache & Migraine | Last Active: Aug 25 10:09am | Replies (45)

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Hey eastbaydave!
Wow it sounds like you’ve been going through it! I had a few bad headaches with my situation but mostly the neurological symptoms. If you haven’t yet, you might want to find a good neurologist and I recommend getting started soon on a preventative medication. Of course they may have to control your pain with other meds. But a good doctor will start you on something to prevent the attacks. When we were trying to see what would stop them, they put me on several different ones. I don’t remember what the side effects were that made me switch so often, but finally the Aimovig worked for me and the symptoms stopped. That was 4 years ago and here we are. I’m actually feeling much better than last week. I’ve been trying to stay away from triggers (look up the 5 “C’s”) and I think that has helped a lot. Other meds that I was on were Quilpta, Ajovy (injectable) and PO Nurtec, which did not work for me.
I really hope you start getting relief and can go back to work soon! I was out of work for three months until the meds started working well.
Gods bless!!

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Replies to "Hey eastbaydave! Wow it sounds like you’ve been going through it! I had a few bad..."

Thank you, Loupy. Been seeing neurologist 4 years now.Not many here (🙄in fact 1, but I like him). Had every treatment, med etc available. Still on Topirimate, and Emgality. Have gone thru everything else including nerve searing, triptans, Amovig, Ajovy… and non medical approved nothing. Lists …Some made it worse . I’m retired. I live to paint. Thought I’d be out there everyday but appreciate it more when I can. Miss hiking and exercising. I see everyday hard others have it here and it can get real bad but I’m lucky, when I’m not feeling sorry for myself.
I posted this but it seems to have got buried. After weeks in a dark room I was forced to find something positive out of all this… or ‘break’
Drew my thoughts and surroundings and did a painting. I feel really weird posting it again… I’m not looking for anything except to show something that helped me…. Try to find a way out…
Thank you