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GNET Sarcoma-Gastrointestinal Neuroectodermal Tumors

Sarcoma | Last Active: Aug 27 7:50pm | Replies (27)

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@yas1 @bschwall
Would love to connect as well.

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I hope you are doing well. My 17 year old daughter was also diagnosed with GNET after a surgical excision of a tumor in her small bowel. Her follow up PET scan was clean. We are doing MRI/CT scans every three months with her first scan in about two weeks. She was only diagnosed about three months ago. What treatment options have you been given?