← Return to GNET Sarcoma-Gastrointestinal Neuroectodermal Tumors
DiscussionGNET Sarcoma-Gastrointestinal Neuroectodermal Tumors
Sarcoma | Last Active: Aug 27 7:50pm | Replies (27)Comment receiving replies
Replies to "@yas1 @bschwall Would love to connect as well."
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I hope you are doing well. My 17 year old daughter was also diagnosed with GNET after a surgical excision of a tumor in her small bowel. Her follow up PET scan was clean. We are doing MRI/CT scans every three months with her first scan in about two weeks. She was only diagnosed about three months ago. What treatment options have you been given?