← Return to Undiagnosed auto immune disease, put on Leflunomide

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@techchick1025

All I can say is good luck because I’ve been going through this forever 25 years. I truly believe fibromyalgia as a catchall for other disorders that are comorbidities of connective tissue diseases. I am finally getting to the bottom of the real issues and most rheumatologist absolutely do not and will not take the time to figure out what’s truly going on. You must find somebody who will actually listen to you Instead of just dictating what they think instead of doing research. I’m having to train my own doctors in rare disorders and I’ve been right on every account.

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Replies to "All I can say is good luck because I’ve been going through this forever 25 years...."

Dear Techchick oh my! You are so right. I have experienced the same as you, But here where I live the doctors will not and do not want to listen and understand. To me it is very important for the doctors to listen and learn about their patients to help me,you and the rest of us. I saw a new general practitioner today and she told me that I have three auto immune diseases. She is quite young and probably this is her first practice. Ahhhh! There is hope yet for us humans. A candle in the dark. Applause for this human beginner in her practice. And for the rest of us hang in there. But now the rest of the story: I brought with me all my recent blood workups and etc. which made it easier to put the story together.