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Questions on follow-up for benign meningioma
Brain Tumor | Last Active: Apr 19, 2017 | Replies (4)Comment receiving replies
Welcome to Connect, @fiddlemama.
Great questions about follow-up. I'd like to bring others into this conversation to see what their experience has been with follow-up post treatment of a behign memingioma. I'm tagging @dianerock @07ram @pegorr @carma @barbarabx @lindalb @55soon @user_che69bc66 @kimf @eleanor1931seminara1931 @lindajean and @debb2010.
You may also be interested in reading and joining in these discussions:
- multiple meningioma brain tumors http://mayocl.in/2j4Pxln
- I've survived three brain tumors!!! One done with Cyberknife http://mayocl.in/2j4WEtX
- Meningioma: I'm scared to watch and wait http://mayocl.in/2d9egF3
Fiddlemama, Are you concerned with having yearly MRIs?
Replies to "Welcome to Connect, @fiddlemama. Great questions about follow-up. I'd like to bring others into this conversation..."
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I had a lemon-sized meningioma removed in Feb. 2015, and it was close to the brain stem. The rehab was hard and I wondered if my life would ever be "normal" again. Thankfully it really is "normal" again. I've had two follow-up MRIs and each has been perfect. However, because I'm clostrophobic, I have to be anesthesized for the 90-minute procedure. This last time in January I had a very bad experience after the procedure. I didn't go back to the doctor. Instead I toughed it out. From what I was reading I think I was not thermally monitored while under anesthesia. Setting that bad experience aside, I told my neurosurgeon about that at my follow up appointment with him. Because the previous 2 MRIs were absolutely clear, he said next year I would only need a CAT scan. THAT I can handle without anesthesia !! I had the surgery done in Lansing MI at Sparrow Hospital.