← Return to Does anyone here have Mycobacteria Abscessus (MABC)?

Discussion
Comment receiving replies
Profile picture for kathyjjb @kathyjjb

That is great news that you can use Clarithromycin!! I had mentioned mine is resistant. My doctor at NJH is amazing!! I did not need a referral to NJH per my insurance company; my ID called it in spite of. Also, when I was at NJH they tested other antibiotics AND 1 antibiotic showed resistant but learned at NJH that it usually shows resistant since it's so unstable and doesn't last in the petri dish or fluid medium long enough.
My Dr is Dr Haas and she is really good!! All you need to do is call NJH and set it up-it takes months to get in. Maybe Cleveland Clinic you can get in quicker.
I'm also taking Chinese herbs and my energy is back to normal. I went to a clinic here that specializes in acupuncture and herbs. The doctor told me the herbs I'm taking is stronger than daily acupuncture. Good to hear from you! Please keep me posted on how you're doing and if and when you can get into either NJH or CC.

Jump to this post


Replies to "That is great news that you can use Clarithromycin!! I had mentioned mine is resistant. My..."

I love that you are taking Chinese herbs. I would like to do that also, and would love to know what you're on since you have done well on them. While looking up Cleveland Clinic, I found that there are 37 bronchiectasis/NTM approved clinics in the US and that Northwestern in Chicago is one of them! I see them on Monday.... they got me in right away. It would just be so nice to get care within driving distance, but I will consider NJH if I need to since they seem to be the gold standard. Thank you for the recommendation of Dr. Haas. I'm sorry yours is resistant to Clarithromycin. I just listened to this podcast which had some interesting information.
https://podcasts.apple.com/us/podcast/recalcitrant-mac-lung-disease-resistant-mac-and-m/id1534165478