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Profile picture for trishcnwma @trishcnwma

Thank you so much for your very detailed response! This is very helpful and I will look into it.
Yes, I agree that doctors hate informed patients and caregivers. They just want to get the money for appointments/procedures, write scripts, and send you on your way. Those who used to say "your such a great advocate" are not as happy when I'm advocating for her and questioning them.
It took a lot of calls but I was able to get her an appointment with an electrophysiologist who seems to have good experience with her cardio issues. Sadly, the appointment is two months away. Hoping a waitlist opening becomes available. There are too few of these specialists and many are not taking new patients.

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Replies to "Thank you so much for your very detailed response! This is very helpful and I will..."

Thank you for letting me know it may help, even a little. In our situations even a little itty bitty bit of help can be huge. Searching for a glimpse of hope for something that might help, even a little, is a long and lonely search, especially when we feel we have already been written off by the experts who just have one size fits all answers, which is not the true medical case.
Praying for you waitlist opening! I really am!